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Caring for babies with palliative care needs and/or multiple complex health needs in England and Wales 2015-2020
Safe People
Organisation name
Chelsea and Westminster Hospital
Organisation sector
CQC Registered Health or/and Social Care provider
Applicant name(s)
Cheryl Battersby
Funders/ Sponsors
CW+ Health Charity and True Colours Trust
Sub-licence arrangements (if any)?
No
Safe Projects
Project ID
NNRD0001
Lay summary
The study aims to quantify neonatal palliative care needs across England and Wales. It will utilise data held in the NNRD to identify babies likely to have palliative care needs within each of the five categories defined in the 2010 BAPM framework on perinatal palliative care. From this, the aim is to provide an indication of neonatal palliative care needs at population level to inform service planning and allocation of resources.
Public benefit statement
Improved neonatal care
Other approval committees
REC reference: 21/LO/0024
Latest approval date
01/07/2021
Safe Data
Dataset(s) name
Safe Setting
Access type
Release
How has data been processed to enhance privacy?
Removal of personal identifiers; replacement of dates with 'minutes from birth'