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Molecular Pathology of Human Genetic Disease

Safe People

Organisation name

Addenbrooke's Hospital

Organisation ID

grid.120073.7

Applicant name(s)

Avgi Andreou

Safe Projects

Project ID

DAA064

Lay summary

Our project aims to find out why some people are more likely to develop tumours in the kidney or endocrine glands or develop multiple different tumours. To help us understand whether rare genetic changes that we detect in patients with tumours are responsible for increasing tumour risks, we want to use information available from patients with other disorders recruited to NIHR Rare Disease BioResource. This will enable us to better develop genetic tests to identify individuals at increased risk of developing tumours and then arrange for them to be screened so that tumours are detected at an early stage. Better knowledge about genetic alterations that predispose to tumour development can also enable new cancer treatments to be developed.

Request category type

Research

Other approval committees

NIHR BioResource Data Access Committee

Latest approval date

30/03/2021

Safe Data

Dataset(s) name
Data sensitivity level

De-Personalised

Legal basis for provision of data under Article 6

(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Lawful conditions for provision of data under Article 9

(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

Common Law Duty of Confidentiality

The individual to whom the information relates has consented

National data opt-out applied?

No

Request frequency

One-off

Safe Setting

Access type

TRE