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Molecular Pathology of Human Genetic Disease
Safe People
Organisation name
Addenbrooke's Hospital
Organisation ID
grid.120073.7
Applicant name(s)
Avgi Andreou
Safe Projects
Project ID
DAA064
Lay summary
Our project aims to find out why some people are more likely to develop tumours in the kidney or endocrine glands or develop multiple different tumours. To help us understand whether rare genetic changes that we detect in patients with tumours are responsible for increasing tumour risks, we want to use information available from patients with other disorders recruited to NIHR Rare Disease BioResource. This will enable us to better develop genetic tests to identify individuals at increased risk of developing tumours and then arrange for them to be screened so that tumours are detected at an early stage. Better knowledge about genetic alterations that predispose to tumour development can also enable new cancer treatments to be developed.
Request category type
Research
Other approval committees
NIHR BioResource Data Access Committee
Latest approval date
30/03/2021
Safe Data
Dataset(s) name
Data sensitivity level
De-Personalised
Legal basis for provision of data under Article 6
(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;
Lawful conditions for provision of data under Article 9
(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
Common Law Duty of Confidentiality
The individual to whom the information relates has consented
National data opt-out applied?
No
Request frequency
One-off
Safe Setting
Access type
TRE