Bookmarks
Use of long-read nanopore sequencing and short-read whole genome sequencing to resolve individuals with antithrombin deficiency, a rare disease which increase the risk of thrombosis, with unknown molecular base.
Safe People
Organisation name
University of Murcia
Organisation ID
grid.10586.3a
Applicant name(s)
Belen de la Morena-Barrio
Safe Projects
Project ID
DAA067
Request category type
Research
Other approval committees
NIHR BioResource Data Access Committee
Latest approval date
04/02/2021
Safe Data
Dataset(s) name
Data sensitivity level
De-Personalised
Legal basis for provision of data under Article 6
(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;
Lawful conditions for provision of data under Article 9
(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
Common Law Duty of Confidentiality
The individual to whom the information relates has consented
National data opt-out applied?
No
Request frequency
One-off
Safe Setting
Access type
TRE