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Describing regional variations in paediatric nephrology service provision using registry and electronic health record data.

Safe People

Organisation name

UK Renal Registry, British Association for Paediatric Nephrology, University Hospitals Bristol & Weston NHS Foundation Trust.

Safe Projects

Project ID

ILD103

Lay summary

The UK Renal Registry collects and reports information for children under paediatric nephrology care who receive long-term kidney replacement therapy (KRT) for kidney failure in the 13 British Association for Paediatric Nephrology (BAPN) centres. These data are reported by centre however little is known about the denominator populations served by each centre and whether there are regional variations in rates of KRT-managed kidney failure within the UK paediatric population. Our aim in undertaking this project is to describe the regional epidemiology of childhood kidney failure for the UK by reporting rates of incident kidney failure among children < 16 years, relative to the estimated paediatric population served by the lead centre. We also wish to examine if it is possible to capture, more broadly, information which reflects paediatric nephrology service provision by centre. Analysis of childhood kidney failure rates by regional or centre level will allow the registry to understand if there are significant variations on a geographical level and whether these variations are mediated by patient or disease factors. Furthermore, an estimation of the paediatric populations served by each centre will inform service and workforce planning at a national level.

Latest approval date

25/05/2021

Safe Data

Dataset(s) name