Data Use - Health Data Research Gateway

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Pathogenicity prediction of genetic variants to improve detection rate of rare disease diagnosis

Safe People

Organisation name

3billion.io

Applicant name(s)

Changwon Keum

Safe Projects

Project ID

DAA054_EGA

Request category type

Research

Other approval committees

NIHR BioResource Data Access Committee

Latest approval date

13/08/2021

Safe Data

Dataset(s) name

Data sensitivity level

De-Personalised

Legal basis for provision of data under Article 6

(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Lawful conditions for provision of data under Article 9

(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

Common Law Duty of Confidentiality

The individual to whom the information relates has consented

National data opt-out applied?

Request frequency

One-off

Safe Setting

Access type

Release