HDR Gateway logo
HDR Gateway logo

Bookmarks

BPD (bleeding and platelet disorders)

Safe People

Organisation name

KU Leuven

Organisation ID

grid.5596.f

Applicant name(s)

Koenraad De Wispelaere

Safe Projects

Project ID

DAA109_GeneDoc

Lay summary

Platelets are the 2nd most abundant cell in the blood and play an important role in bleeding disorders. Our research group wants to improve the rate in which people with inherited bleeding disorders are diagnosed. DNA from patients with bleeding disorders was analysed for changes and these changes have been stored in a large database named ‘Chromoscope’. We would like to compare DNA changes from individuals with inherited bleeding disorders and those from healthy individuals. By studying these changes, we can study if these differences are related to changes in platelet function or their formation. This may help us to better understand why some people inherit bleeding disorders and some don’t.

Request category type

Research

Other approval committees

NIHR BioResource Data Access Committee

Latest approval date

17/11/2021

Safe Data

Dataset(s) name
Data sensitivity level

De-Personalised

Legal basis for provision of data under Article 6

(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Lawful conditions for provision of data under Article 9

(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

Common Law Duty of Confidentiality

The individual to whom the information relates has consented

National data opt-out applied?

No

Request frequency

One-off

Safe Setting

Access type

Release