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Comparing the burden of long COVID in the community as measured by self-report and electronic health records: a study by the CONVALESCENCE consortium

Safe People

Organisation name

University College London

Organisation ID

grid.83440.3b

Applicant name(s)

Dylan Williams

Safe Projects

Project ID

DAA101_llc_0006

Lay summary

There is considerable uncertainty about the extent to which individuals with a history of COVID-19 go on to develop long COVID. In particular, separate findings from surveys of individuals in the community self-reporting long COVID and studies of primary care records have suggested that the proportion of individuals with a history of COVID-19 receiving a diagnosis of long COVID from general practitioners may be of an order of magnitude lower than the proportions of individuals reporting persistent symptoms themselves. In this study, we will compare the self-reporting of long COVID by individuals with their primary care records of long COVID, to further evaluate the extent of long COVID in the community being recognised by primary care practitioners.

Request category type

Research

Other approval committees

NIHR BioResource Data Access Committee

Latest approval date

28/09/2021

Safe Data

Dataset(s) name
Data sensitivity level

De-Personalised

Legal basis for provision of data under Article 6

(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Lawful conditions for provision of data under Article 9

(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

Common Law Duty of Confidentiality

The individual to whom the information relates has consented

National data opt-out applied?

No

Request frequency

One-off

Safe Setting

Access type

TRE