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Genome Medicine for inherited platelet disorders

Safe People

Organisation name

KU Leuven

Organisation ID

grid.5596.f

Applicant name(s)

Fabienne Ver Donck

Safe Projects

Project ID

DAA107_EGA

Lay summary

Our research group wants to improve the rate in which people with inherited bleeding disorders are diagnosed. We would like to compare blood samples from individuals with inherited bleeding disorders and those from healthy individuals. By studying these blood samples, we can look at the differences of DNA behaviour, in each group, and this may help us to better understand why some people inherit bleeding disorders and some don’t. Blood sample data has already been collected and is stored in a large repository. We would like to examine and include this data in our research.

Request category type

Research

Other approval committees

NIHR BioResource Data Access Committee

Latest approval date

12/10/2021

Safe Data

Dataset(s) name
Data sensitivity level

De-Personalised

Legal basis for provision of data under Article 6

(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Lawful conditions for provision of data under Article 9

(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

Common Law Duty of Confidentiality

The individual to whom the information relates has consented

National data opt-out applied?

No

Request frequency

One-off

Safe Setting

Access type

Release