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Genome Medicine for inherited platelet disorders
Safe People
Organisation name
KU Leuven
Organisation ID
grid.5596.f
Applicant name(s)
Fabienne Ver Donck
Safe Projects
Project ID
DAA107_EGA
Lay summary
Our research group wants to improve the rate in which people with inherited bleeding disorders are diagnosed. We would like to compare blood samples from individuals with inherited bleeding disorders and those from healthy individuals. By studying these blood samples, we can look at the differences of DNA behaviour, in each group, and this may help us to better understand why some people inherit bleeding disorders and some don’t. Blood sample data has already been collected and is stored in a large repository. We would like to examine and include this data in our research.
Request category type
Research
Other approval committees
NIHR BioResource Data Access Committee
Latest approval date
12/10/2021
Safe Data
Dataset(s) name
Data sensitivity level
De-Personalised
Legal basis for provision of data under Article 6
(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;
Lawful conditions for provision of data under Article 9
(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
Common Law Duty of Confidentiality
The individual to whom the information relates has consented
National data opt-out applied?
No
Request frequency
One-off
Safe Setting
Access type
Release