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RTB partcipants data to be held locally, to help enable local research.

Safe People

Organisation name

University College London

Organisation ID

grid.83440.3b

Applicant name(s)

Nicholas Wood

Safe Projects

Project ID

DAA108

Lay summary

The UCL BioResource is a panel of over 10, 000 volunteers from the North London area who have agreed to be approached for research studies. Data relating to their health as well as genetic information is kept in order to match them with the most relevent studies. In this way study recruitment can be targeted and much more effective.

Request category type

Research

Other approval committees

NIHR BioResource Data Access Committee

Latest approval date

29/11/2021

Safe Data

Dataset(s) name
Data sensitivity level

De-Personalised

Legal basis for provision of data under Article 6

(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Lawful conditions for provision of data under Article 9

(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

Common Law Duty of Confidentiality

The individual to whom the information relates has consented

National data opt-out applied?

No

Request frequency

One-off

Safe Setting

Access type

TRE