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The role of genetics in liver disease during pregnancy
Safe People
University College London
grid.83440.3b
Julia Zöllner
Safe Projects
DAA133
The study has the following aims: Aim 1. To investigate the genetic cause of intrahepatic cholestasis of pregnancy (ICP), the most common liver disorder of pregnancy, in women in the NIHR bioresource. ICP can cause problems with the health of the unborn baby, e.g. preterm birth and stillbirth, and affected women can have serious liver disease in later life. Aim 2. To find out whether ICP-associated genetic changes result in other liver diseases such as cirrhosis in affected women and their families. The combination of medical records and genomic data provides a powerful tool to address these aims.
Research
NIHR BioResource Data Access Committee
22/06/2022
Safe Data
De-Personalised
(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;
(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
The individual to whom the information relates has consented
No
One-off
Safe Setting
Release