University of Cambridge

Julie Von Ziegenweidt

DAA134_llc_0019

The UK Longitudinal Linkage Collaboration (UK LLC) has been set up to bring together data from longitudinal population study (LPS) volunteers with their health records. This will allow data managers from studies to check how good the health information they get from their volunteers is. For example, they can look at COVID-19 health records to understand which participants had the disease and how bad it was, and compare it to what people have reported themselves. They will also be able to create new data. For example, they can look into health records of people who have heart disease to understand what type of heart disease it is. Then they can put their participants’ data into more specific categories to see if having a certain type causes you to have worse COVID-19 symptoms. All of this adds value to the study data and cannot be done without access to the health records. Better data means better research, which can lead to improvement in health and wellbeing throughout and beyond the coronavirus pandemic.

Research

NIHR BioResource Data Access Committee

27/06/2022

De-Personalised

(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

The individual to whom the information relates has consented

No

One-off

TRE