University College London

Academic Institute

No

CCU049

This project addresses two challenges we face in Long Covid research: 1. Identifying Long Covid patients using data from electronic health records is difficult, as only a small portion of patients were recorded as having a ‘post-Covid condition’. 2. The scale could be potentially higher, as around 12% of COVID-19 patients developed Long Covid, however, we have very little knowledge about the current healthcare utilisation in individuals with Long Covid. More importantly, we are unaware whether the current practice for Long Covid is the best option we have. This information is crucial for funding allocations, public policies and health care practice. To address these problems, this project will first try to identify individuals with Long Covid in electronic health records by using official codes available for diagnosis of Long Covid, finding GP visits or hospital visits after 12 weeks of SARS-CoV-2 infection and using clinical history and other features. Once people with Long Covid are identified, this project will explore their use of healthcare, by analysing primary care, admitted patient care, outpatients, procedures, tests and medication/prescription data, which will help the NHS or health care providers to plan more efficiently. We will also study the impact of vaccination, different waves of the pandemic. Some patients develop new cardiovascular disease, and we will particularly study the associated healthcare utilisation for this group.

Eventually, this project will evaluate the effectiveness and cost-effectiveness of current care for those with Long Covid, which will help to identify any inefficiency in Long Covid care, provide better support to patients, and inform policy and resource allocation. Visit the BHF Data Science Centre website for more detailed information about project outputs. https://bhfdatasciencecentre.org/projects/ccu049/

This project accessed the following datasets within the Trusted Research Environment(s) for CVD-COVID-UK / COVID-IMPACT: - ENGLAND: - Civil Registration - Deaths - COVID-19 SARI-Watch (formerly CHESS) - Covid-19 Second Generation Surveillance System - Covid-19 UK Non-hospital Antibody Testing Results - Covid-19 UK Non-hospital Antigen Testing Results - COVID-19 Vaccination Adverse Reaction - COVID-19 Vaccination Status - Emergency Care Data Set (ECDS) - GPES Data for Pandemic Planning and Research (COVID-19) - Hospital Episode Statistics Accident and Emergency - Hospital Episode Statistics Admitted Patient Care - Hospital Episode Statistics Critical Care - Hospital Episode Statistics Outpatients - ICNARC: Intensive Care National Audit and Research Centre - Improving Access to Psychological Therapies Data Set - Medicines dispensed in Primary Care (NHSBSA data) - Mental Health Services Data Set - NICOR – MINAP: Myocardial Ischaemia National Audit Project - NICOR – NACRM: National Audit of Cardiac Rhythm Management - NICOR – NACSA: National Adult Cardiac Surgery Audit - NICOR – NCHDA: National Congenital Heart Disease Audit - NICOR – NHFA: National Heart Failure Audit - NICOR – PCI: Percutaneous Coronary Interventions - NICOR – TAVI: Transcatheter Aortic Valve Implantation - Secondary Care Prescribed Medicines (EPMA) - Secondary Uses Services Payment By Results - Sentinel Stroke National Audit Programme Clinical Dataset - Uncurated Low Latency Hospital Data (Admitted Patient Care, Outpatients, Critical Care) - WALES: - Annual District Birth Extract (ADBE) - Annual District Death Daily (ADDD) - Annual District Death Extract (ADDE) - Care Home Dataset (CARE) - Congenital Anomaly Register and Information Service (CARS) - Covid Vaccination Dataset (CVVD) - COVID-19 Consolidated Deaths (CDDS) - COVID-19 Shielded People List (CVSP) - COVID-19 Test Results (PATD) - COVID-19 Test Trace and Protect (CTTP) - Legacy - Critical Care Dataset (CCDS) - Emergency Department Dataset (EDDS) - Emergency Department Dataset Daily (EDDD) - Intensive Care National Audit and Research Centre (ICCD) - Legacy - COVID only - Intensive Care National Audit and Research Centre (ICNC) - Maternity Indicators Dataset (MIDS) - National Community Child Health Database (NCCHD) - Outpatient Database for Wales (OPDW) - Outpatient Referral (OPRD) - Patient Episode Dataset for Wales (PEDW) - Referral to Treatment Times (RTTD) - SAIL Dementia e-Cohort (SDEC) - SARS-CoV-2 viral sequencing data (COG-UK data)-Lineage/Variant Data-Wales (CVSD) - Welsh Ambulance Services NHS Trust (WASD) - Welsh Demographic Service Dataset (WDSD) - Welsh Dispensing Dataset (WDDS) - Legacy - Welsh Longitudinal General Practice Dataset (WLGP) - Welsh Primary Care - Welsh Longitudinal GP Dataset - Welsh Primary Care (Daily COVID codes only) (GPCD) - Welsh Results Reports Service (WRRS)

08/08/2022

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