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Quality checks curation and methodological enhancement of the UK LLC Partner Studies using linked data

Safe People

Organisation name

University College London

Organisation sector

Academic Institute

Applicant name(s)

Andrew Wong

Safe Projects

Project ID

llc_0020

Lay summary

The UK Longitudinal Linkage Collaboration (UK LLC) has been set up to bring together data from longitudinal population study (LPS) volunteers with their health records. This will allow data managers from studies to check how good the health information they get from their volunteers is. For example, they can look at COVID-19 health records to understand which participants had the disease and how bad it was, and compare it to what people have reported themselves. They will also be able to create new data. For example, they can look into health records of people who have heart disease to understand what type of heart disease it is. Then they can put their participants’ data into more specific categories to see if having a certain type causes you to have worse COVID-19 symptoms. All of this adds value to the study data and cannot be done without access to the health records. Better data means better research, which can lead to improvement in health and wellbeing throughout and beyond the coronavirus pandemic.

Latest approval date

17/06/2022

Safe Data

Dataset(s) name

NHS Digital Civil Registrations – Deaths

NHS Digital Cancer Registration Data

NHS Digital Hospital Episode Statistics Admitted Patient Care

NHS Digital Hospital Episode Statistics Admitted Patient Care (Maternity)

NHS Digital Hospital Episode Statistics

Admitted Patient Care (Augmented/critical care period)

NHS Digital Hospital Episode Statistics Critical Care

NHS Digital Hospital Episode Statistics Outpatient

NHS Digital Hospital Statistics Accident and Emergency

Emergency Care Data Set (ECDS)**

NHS Digital Mental Health Services Data Set

NHS Digital Medicines Dispensed in Primary Care

NHS Digital GDPPR Data for Pandemic Planning and Research (COVID-19)

NHS Digital COVID-19 Vaccination Status

NHS Digital COVID-19 Vaccination Adverse Reactions

NHS Digital COVID-19 SARI-WATCH (formerly chess)

NHS Digital COVID-19 Second Generation Surveillance System (Pillar 1 & Pillar 2)

NHS Digital NPex (Pillar 2)

NHS Digital COVID-19 UK Non-hospital Antibody Testing Results (Pillar 3)