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UHB Linked Diabetic Eye Disease and Cardiac Outcomes

Population Size

Not reported

Years

2005 - 2020

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

Not applicable

Summary

Vision and systemic cardiac outcome data for those identified by having a diabetic screening eye test and an acute episode at Queen Elizabeth Hospital, Birmingham. Key data include demographics, longitudinal cardiac outcomes, visual data, and eye grades.

Documentation

www.insight.hdrhub.org/about-us

Background: Diabetes mellitus affects over 3.9 million people in the United Kingdom (UK), with over 2.6 million people in England alone. More than 1 million people living with diabetes are acutely admitted to hospital due to complications of their illness every year. Cardiovascuar disease is the most prevalent cause of morbidity and mortality in people with diabetes. Diabetic retinopathy (DR) is a common microvascular complication of type 1 and type 2 diabetes and remains a major cause of vision loss and blindness in those of working age. This dataset includes the national screening diabetic grade category (seven categories from R0M0 to R3M1) from the Birmingham, Solihull and Black Country DR screening program (a member of the National Health Service (NHS) Diabetic Eye Screening Programme) and the University Hospitals Birmingham NHS Trust cardiac outcome data.

Geography: The West Midlands has a population of 5.9 million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.

Data sources:

  1. The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200, 000 diabetic patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic eye screening scheme in Europe.
  2. The Electronic Health Records held at University Hospitals Birmingham NHS Foundation Trust is one of the largest NHS Trusts in England, providing direct acute services and specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds and 100 ITU beds. UHB runs a fully electronic healthcare record for systemic disease.

Scope: All Birmingham, Solihull and Black Country diabetic eye screened participants who have been admitted to UHB with a cardiac related health concern from 2006 onwards. Longitudinal and individually linked with their diabetic eye care from primary screening data and secondary care hospital cardiac outcome data including • Demographic information (including age, sex and ethnicity) • Diabetes status • Diabetes type • Length of time since diagnosis of diabetes • Visual acuity • The national screening diabetic screening grade category (seven categories from R0M0 to R3M1) • Diabetic eye clinical features • Reason for sight and severe sight impairment • ICD-10 and SNOMED-CT codes pertaining to cardiac disease • Outcome

Website:

https://www.retinalscreening.co.uk/
Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

Background Diabetic Retinopathy, Digital Surveillance, Clinically Significant Macular Oedema, Diabetic Retinopathy, Diabetic Maculopathy, Diabetes Mellitus Type 1, Diabetes Mellitus Type 2, National Screening Grading, Gestational Diabetes, Haemorrhage, Hospital Eye Service, Images, Microaneurysm, Non-Proliferative Diabetic Retinopathy, New Vessels, Proliferative Diabetic Retinopathy, Optical Coherence Tomography, Pregnancy, Retina, Referral, Screening, Screening Programme, Vision, Visual Acuity, Blood Glucose, Fasting Blood Glucose, Dialysis, Haemoglobin A1c, Glycated Haemoglobin Test, Insulin Resistance, Macrovascular Compilations, Microvascular Complications, Pre-Diabetes, Autoimmune Disease, Hospitalised, Urgent Care, Acute Care, Emergency, Surgery, Procedures, Outcomes, Discharge, Death, Secondary Care, Tertiary Care, Diabetic Angiopathy, Hypercholesterolemia, Hyperlipidemia, Lipoprotein Deficiency, Metabolic Syndrome, Hypertensive Diseases, Diseases Of The Circulatory System, Major Adverse Cardiac Events, MACE, Acute Rheumatic Fever, Chronic Rheumatic Heart Diseases, Hypertensive Diseases, Hypertension, Ischemic Heart Diseases, Pulmonary Heart Disease And Diseases Of Pulmonary Circulation, Cerebrovascular Diseases, Diseases Of Arteries, Arterioles And Capillaries, Angina Pectoris, Acute Myocardial Infarction, Subsequent ST Elevation, STEMI, Non-ST Elevation, NSTEMI, Myocardial Infarction, Acute Ischemic Heart Diseases, Chronic Ischemic Heart Disease

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

64389 patients, 1843659 retinal scan images

64389

Count

19 Jul 2021

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Secondary care - Outpatients, Secondary care - In-patients, Clinic
Patient pathway description
This dataset is representative of the patient pathway for community screening of diabetic eye disease and grading.  This DES dataset is linked within this dataset to include those patients who were then subsequently admitted to the Queen Elizabeth Hospital, University Hospitals Birmingham NHS Trust for cardiac conditions.  This limits the dataset to only those patients who have been seen both in screening and then subsequently in the hospital for heart disease.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Annual
Version
1.0.0
Modified

08/10/2024

Distribution release date

31/07/2021

Citation Requirements
University Hospitals Birmingham NHS Foundation Trust

Coverage

Start date

01/01/2005

End date

31/12/2020

Time lag
2-4 weeks
Geographic coverage
United Kingdom, England, West Midlands
Minimum age range
12
Maximum age range
110
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
NHS NATIONAL CODES
Format
Images are available in DICOM format containing jpg images. Patient data will be available in a secure environment and is stored in a relational database., SQL, .jpg image, csv

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access method category
TRE/SDE
Access service description
INSIGHT adheres to HDRUK data access principles including the five SAFES anonymised data is provided into an agreed Trusted Research Environment such as the PIONEER Microsoft Azure TRE at University Hospitals Birmingham NHSFT or equivalent external safe environment, under data license.
Jurisdiction
GB-ENG, GB-GB
Data use limitation
Research-specific restrictions
Data use requirements
Project-specific restrictions
Data Controller
University Hospitals Birmingham NHS Foundation Trust
Data Processor
NOT APPLICABLE

Dataset Types: Health and disease


Collection Sources: No collection sources listed