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Scottish Linked Congenital Conditions Dataset (SLiCCD)
Population Size
Not reported
Years
2020 - 2020
Associated BioSamples
None/not available
Geographic coverage
United Kingdom Scotland
Lead time
Not applicable
Summary
The dataset contains a list of all pregnancies ending in Scotland affected by a major congenital condition as defined by EUROCAT and CARDRISS.
This means all live-born babies diagnosed within the first year of life, spontaneous miscarriages and stillbirths occurring at 20 weeks gestation or over, and pregnancies terminated at any gestation that were affected by a major structural or chromosomal condition or recognised syndrome.
Pregnancies ending between 2000 and 2020 are included.
Documentation
The dataset contains a list of all pregnancies ending in Scotland affected by a major congenital condition as defined by EUROCAT and CARDRISS.
Dataset type
Health and disease, Registry
Dataset sub-type
Not applicable
Associated media
https://publichealthscotland.scot/resources-and-tools/health-intelligence-and-data-management/national-data-catalogue/national-datasets/search-the-datasets/scottish-linked-congenital-conditions-dataset-sliccd/, https://publichealthscotland.scot/population-health/conditions-and-diseases/disease-registration/congenital-conditions-and-rare-diseases-registration-and-information-service-for-scotland-cardriss/congenital-conditions/what-are-congenital-conditions/
Keywords
Register, Congenital, Maternity
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Events | 2000 | 31 Dec 2020 |
Provenance
Purpose of dataset collection
Disease registry
Source of data extraction
EPR
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Annual
Version
1.0.0
Modified
08/01/2025
Coverage
Start date
01/01/2020
End date
31/12/2020
Time lag
Not applicable
Geographic coverage
United Kingdom Scotland
Maximum age range
1
Accessibility
Language
en
Alignment with standardised data models
NHS SCOTLAND DATA DICTIONARY
Controlled vocabulary
NHS SCOTLAND NATIONAL CODES
Format
text/csv
Data Access Request
Dataset pipeline status
Available
Time to dataset access
Not applicable
Access request cost
Access method category
TRE/SDE
Access service description
Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Jurisdiction
UK
Data use limitation
General research use
Data Controller
Public Health Scotland
Data Processor
Public Health Scotland