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Scottish Linked Congenital Conditions Dataset (SLiCCD)

Population Size

Not reported
Population Size statistic card

Years

2020 - 2020

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom Scotland

Geographic coverage statistic card

Lead time

Not applicable

Lead time statistic card

Summary

The dataset contains a list of all pregnancies ending in Scotland affected by a major congenital condition as defined by EUROCAT and CARDRISS.

This means all live-born babies diagnosed within the first year of life, spontaneous miscarriages and stillbirths occurring at 20 weeks gestation or over, and pregnancies terminated at any gestation that were affected by a major structural or chromosomal condition or recognised syndrome.

Pregnancies ending between 2000 and 2020 are included.

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

2000

31 Dec 2020

Provenance

Purpose of dataset collection

Disease registry

Source of data extraction

EPR

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Annual

Version

1.0.0

Modified

08/01/2025

Coverage

Start date

01/01/2020

End date

31/12/2020

Time lag

Not applicable

Geographic coverage

United Kingdom Scotland

Maximum age range

1

Dataset completeness

https://publichealthscotland.scot/media/24460/2023-12-19_congenitalconditionsinscotland2021_technicalreport.pdf

Accessibility

Language

en

Alignment with standardised data models

NHS SCOTLAND DATA DICTIONARY

Controlled vocabulary

NHS SCOTLAND NATIONAL CODES

Format

text/csv

Data Access Request

Dataset pipeline status

Available

Access rights

https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/services-we-offer/

Time to dataset access

Not applicable

Access request cost

https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/cost-of-services/

Access method category

TRE/SDE

Access service description

Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/

Jurisdiction

UK

Data use limitation

General research use

Data Controller

Public Health Scotland

Data Processor

Public Health Scotland

Demographics

Dataset Types: Health and disease, Registry

Collection Sources:

Relationships: