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Children and Young People Mental Health Services Data Set (CYP MHSDS)

Population Size

Not reported

Years

2017

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

...see more

Lead time

1-2 months

Summary

All activity relating to Children and Young People who receive assessments and treatment from Mental Health Services is within the scope of the CYP Mental Health Services Data Set

Documentation

All activity relating to Children and Young People who receive assessments and treatment from Mental Health Services is within the scope of the CYP Mental Health Services Data Set, where the patient has, or are thought to have:

  • a mental health condition and/or
  • a need for support with their mental wellbeing and/or
  • a learning disability and/or
  • Autism or any other neurodevelopmental condition
  • The scope of the Mental Health Services Data Set requires patient record level data submission from services as follows:

For each patient attending a service located in England: If the care is wholly funded by the NHS: the data submission for that patient is mandatory If the care is partially funded by the NHS: the data submission for that patient is mandatory If the care is wholly funded by any means that is not NHS: the data submission for that patient is optional.

For each patient attending a service located outside England, but commissioned by an English Integrated Care Board or NHS England specialised commissioner, the data submission is optional.

We currently have the data from Central and North West London NHS Foundation Trust from financial year 2017 onwards.

Dataset type
Health and disease, Treatments/Interventions
Dataset sub-type
Mental health

Keywords

MH, Mental Health, Discover-NOW, Children and Young People Improving Access to Psychological Therapies, CYP-IAPT, MHSDS, Real World data, Linked longitudinal, Integrated Care

Provenance

Purpose of dataset collection
Other, Care
Source of data extraction
EPR
Collection source setting
Secondary care - Outpatients, Secondary care - In-patients
Patient pathway description
The NWL MH linked table holds activity data from Mental health providers and contains the type and location of care received, episodes of care, diagnoses and questionnaire scores for individuals who have accessed children mental health services within NWL.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Monthly
Version
1.0.0
Modified

17/01/2025

Citation Requirements

NHS NWL ICS; Discover-NOW

Coverage

Start date

01/04/2017

Time lag
1-2 months
Geographic coverage
United Kingdom, England, London, Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Kensington and Chelsea, Westminster
Maximum age range
17
Follow-up

10 Years

Accessibility

Language
en
Alignment with standardised data models
LOCAL
Format
Excel, SQL, Tableau, R

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
1-2 months
Access request cost
In Progress
Access method category
TRE/SDE
Access service description
Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.
Jurisdiction
UK
Data use limitation
No restriction
Data use requirements
Collaboration required,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Joint data controller model across London
Data Processor

North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)

Dataset Types: Health and disease, Treatments/Interventions

Dataset Sub-types: Mental health


Collection Sources: Secondary care - Outpatients, Secondary care - In-patients

Publications about this dataset

How an electronic health record became a real-world research resource: comparison between London's W...Bottle A, Cohen C, Lucas A, Saravanakumar K, Ul-Ha...

BMC medical informatics and decision making BMC medical informatics and decision making

Published - 2020