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White Swan UK Cardiovascular Online Patient & Public Conversations Dataset
Population Size
64,613
People
Years
2023
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Lead time
1-2 months
Summary
The dataset contains anonymised patient and public conversation which has taken place online regarding 17 cardiovascular disease areas (including: arrhythmia & tachycardia, cardiopulmonary disease and heart failure) in the UK. The dataset is segmented by cardiovascular conditions and topics conversed about such as testing, imaging and emotional impact.
Documentation
The dataset contains anonymised patient and public conversation which has taken place online regarding 17 cardiovascular disease areas (including: arrhythmia & tachycardia, cardiopulmonary disease and heart failure) in the UK. The dataset is segmented by cardiovascular conditions and topics conversed about such as testing, imaging and emotional impact.
Dataset type
Health and disease, Socioeconomic, Lifestyle, Imaging types, Information and communication, Measurements/Tests, Treatments/Interventions
Dataset sub-type
Cardiovascular
Dataset population size
64613
Associated media
on request
Keywords
Cardiovascular, Social Data, Online Data, Patient Testimonials, arrhythmia, tachycardia, heart failure, cardiopulmonary, Aneurysm, Aneurysms, dissection, CHD, Cardiomyopathy, Cardiomegaly, stroke, cerebrovascular, congential, coronary, heart disease, embolism, thrombosis, valve, hypertension, blood pressure, cholesterol, heart murmur, atherosclerosis, stenosis, treatment, mobility, testing, imaging, diagnosis, risk factors, prevention, testimonials
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Persons in this dataset are determined by the unique volume of chosen display names in the data. This is calculated per source (reddit, reviews, other forums), and then totaled together. In other forums and reviews domains persons may choose to denote themselves as anonymous. In this case, anonymous users are counted once per domain. For example, on 'healthunlocked.com/vasculitis-uk'. | 64613 | Unique online names indicating number of persons | 01 Feb 2025 |
Provenance
Purpose of dataset collection
Research cohort
Source of data extraction
Free text NLP
Collection source setting
Other
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Irregular
Version
1.0.0
Modified
13/02/2025
Citation Requirements
White Swan is a registered charity in England and Wales (1176486) improving health and wellbeing through AI technology and analytics.
Coverage
Start date
01/02/2023
Time lag
1-2 months
Geographic coverage
United Kingdom
Maximum age range
112
Accessibility
Language
en
Alignment with standardised data models
OTHER, LOCAL
Controlled vocabulary
LOCAL, HPO, OTHER
Format
csv, xlsx, web page explorer
Data Access Request
Dataset pipeline status
Available
Access rights
In Progress
Time to dataset access
1-2 months
Access request cost
On Request
Access method category
Varies based on project
Access service description
On Request
Jurisdiction
UK
Data use limitation
Project-specific restrictions
Data use requirements
Project-specific restrictions
Data Controller
White Swan
Data Processor
White Swan