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ICICLE-PD (The Incidence of Cognitive Impairment in Cohorts with Longitudinal Evaluation-PD)

Population Size

0

People

Population Size statistic card

Years

2009

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Geographic coverage statistic card

Lead time

Data only
Lead time statistic card

Summary

The ICICLE-PD (Incidence of Cognitive Impairment in Cohorts with Longitudinal Evaluation - Parkinson’s Disease) study is a significant research project focused on understanding the development and progression of cognitive impairment in individuals with Parkinson’s disease (PD). It aims to track the incidence and progression of cognitive decline over time in people with PD, identifying risk factors and biomarkers associated with cognitive changes. By closely following participants longitudinally,

DOI for dataset

https://doi.org/10.48532/029000

Documentation

The ICICLE-PD study aims to accurately characterise two independent cohorts of incident parkinsonsim in Newcastle-Gateshead and Cambridgeshire. A key objective is to identify patients who develop PD Dementia and the factors that predict its evolution. From this information, a simplified panel of tests that can be used to predict PDD will be established. ICICLE-PD will therefore provide a platform for studies investigating agents designed to help treat this complication of PD. Longitudinal follow up is on-going with assessments at 18 month intervals.

Dataset type

Health and disease, Imaging types, Omics

Associated media

http://bam-ncl.co.uk/our-work/studies/icicle-pd/

Keywords

Provenance

Purpose of dataset collection

Study

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Continuous

Version

1.0.0

Modified

17/02/2025

Coverage

Start date

06/01/2009

Time lag

Not applicable

Geographic coverage

United Kingdom

Minimum age range

45

Maximum age range

110

Follow-up

Continuous

Accessibility

Language

en

Alignment with standardised data models

OTHER

Controlled vocabulary

OTHER

Format

CSV

Data Access Request

Dataset pipeline status

Available

Access rights

https://portal.dementiasplatform.uk/Apply/DataAccessPolicy

Access method category

TRE/SDE

Access service description

The Data Portal runs its analysis environment through a virtual desktop infrastructure accessible via VMWare software. By analysing the data in the virtual desktop environment you are working on DPUK's servers – meaning there is no physical transfer of data to researchers. The processing capacity enables you to work with large numbers of records and integrate these with the other data modalities that exist in the DPUK cohorts. This solution also offers researchers the freedom to conduct their analyses anywhere with an internet connection.

Data Controller

Newcastle University

Data Processor

Dementias Platform UK

Dataset Types: Health and disease, Imaging types, Omics

Collection Sources: