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NICOLA (Northern Ireland Cohort for the Longitudinal study of Ageing)

Population Size

0

People

Population Size statistic card

Years

2013

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Northern Ireland

Geographic coverage statistic card

Lead time

Data only
Lead time statistic card

Summary

The NICOLA (Northern Ireland Cohort for the Longitudinal Study of Ageing) is a large-scale research project aimed at understanding the social, economic, and health factors that influence aging in Northern Ireland. The study follows a diverse group of older adults over time, collecting detailed data on their physical health, cognitive function, lifestyle, and socio-economic conditions.

Documentation

NICOLA is a public health study involving men and women aged 50 years and over living in Northern Ireland who will voluntarily be followed over a number of years. Households were identified that had people aged 50 and over living in them, a sample representative of the population of Northern Ireland was drawn from this and then the employed market research company sought the participation from appropriate members within those selected households. The study, set up by the Centre for Public Health in Queen’s University Belfast aims to provide information on the health, social and economic circumstances of ~8500 men and women as they grow older in Northern Ireland and how their circumstances may change over those coming years. The primary objective is to collect longitudinal data on physical and mental health, well-being,disability, economic circumstances, social participation and connectedness as people plan for, move into and progress beyond retirement. Information is obtained through a fieldwork survey utilising a CAPI (Computer Assisted Personal Interview) and a Self Completion Questionnaire which the participant completes in their own time. These interviews will take place approximately every 2-3 years. The interviewers collect information on living arrangements, children, education, income and assets, physical and mental health, employment, lifelong learning, planning for retirement, care and social support. Questions will be asked about health, diet, work, family and social networks, income and benefit receipts, quality of life, cognitive functioning, daily activities, housing, retirement and pensions. The affect of 'the troubles' on the lives of people will also be explored. A physical health assessment is also planned for alternative waves (wave 1, wave 3, wave 5 etc.) covering cognitive measures, blood pressure, grip strength, anthropometric measurements, gait and balance, respiratory, bodystat, blood/urine samples and an ophthalmic component. Information gathered during this study will be used to inform and plan Northern Ireland Health and Social Care provision in the future, and to design other policies targeted towards older people. NICOLA will address longer term research goals to investigate the determinants of retirement behaviour and economic wellbeing, the impact of cognitive function and sensory disability on decision making, the determinants of disability trajectories, the influence of social participation on these and the interaction of genetic, biological and psychosocial determinants on health and mortality. At present there are no other studies in Northern Ireland that will look at such an array of topics that provide a fuller understanding of the ageing process.

Dataset type

Health and disease

Dataset sub-type

Not applicable, Neurological

Associated media

Keywords

Provenance

Purpose of dataset collection

Study

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Continuous

Version

1.0.0

Modified

17/02/2025

Coverage

Start date

20/01/2013

Time lag

Not applicable

Geographic coverage

United Kingdom, Northern Ireland

Follow-up

Continuous

Accessibility

Language

en

Alignment with standardised data models

OTHER

Controlled vocabulary

OTHER

Format

CSV

Data Access Request

Dataset pipeline status

Available

Access method category

TRE/SDE

Access service description

The Data Portal runs its analysis environment through a virtual desktop infrastructure accessible via VMWare software. By analysing the data in the virtual desktop environment you are working on DPUK's servers – meaning there is no physical transfer of data to researchers. The processing capacity enables you to work with large numbers of records and integrate these with the other data modalities that exist in the DPUK cohorts. This solution also offers researchers the freedom to conduct their analyses anywhere with an internet connection.

Data Controller

Queens University Belfast

Data Processor

Dementias Platform UK

Dataset Types: Health and disease

Dataset Sub-types: Not applicable, Neurological


Collection Sources: