Bookmarks
HOCM
Population Size
437
People
Years
2023 - 2025
Associated BioSamples
None/not available
Geographic coverage
International
Lead time
2-6 months
Summary
SOLENOID is a study investigating predictors of clinical outcomes in Hypertrophic Cardiomyopathy (HCM). The study focuses on understanding the natural history of HCM and identifying risk factors for its progression.
Documentation
The SOLENOID project, short for PredictorS Of cLinical outcomEs iN hypertrOphIc carDiomyopathy, which has a primary aim to enhance the prediction of disease progression in patients with hypertrophic cardiomyopathy a prevalent inherited heart condition affecting approximately 1 in 500 individuals.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
437
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | 437 multimodal patient data (including echocardiograms). | 437 | Count | 20 Feb 2025 |
Provenance
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Static
Version
1.0.0
Modified
18/02/2025
Citation Requirements
SDE022b
Coverage
Start date
01/01/2023
End date
01/12/2025
Time lag
2-6 months
Geographic coverage
International
Accessibility
Language
en
Alignment with standardised data models
LOCAL
Controlled vocabulary
LOCAL
Format
SQL
Data Access Request
Dataset pipeline status
Not available
Access rights
Information Governance and Ethics - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/information-governance-and-ethics)
Time to dataset access
2-6 months
Access request cost
Please email wmsde@uhb.nhs.uk
Access method category
TRE/SDE
Access service description
Data Request Process - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/research/data-request)