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Treatment and clinical pathways of patients with Idiopathic or Progressive Pulmonary Fibrosis

Population Size

Not reported
Population Size statistic card

Years

2021 - 2023

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

West Midlands

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Summary

This study aims to describe the current treatment and health outcomes in patients diagnosed with idiopathic pulmonary fibrosis (IPF) or progressive pulmonary fibrosis (PPF), both of which are types of interstitial lung disease (ILD), using real-world data.

Documentation

The goal of this study is to understand current standard of treatment in a real-world setting for IPF and PPF. Additionally, the study will characterise the patient populations by assessing the demographic and baseline clinical characteristics, diagnosis pathways, natural history of the conditions under current treatment patterns, and clinical outcomes. Moreover, the risk factors for disease progression will be explored, with particular interest in the relationship between the forced vital capacity (FVC) decline and mortality.

Dataset type

Health and disease

Keywords

Provenance

Purpose of dataset collection

Care

Source of data extraction

EPR

Collection source setting

Clinic, Community, Prescribing - Community pharmacy, Prescribing - Hospital, Secondary care - Accident and Emergency, Secondary care - ICU, Secondary care - In-patients, Secondary care - Outpatients

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Static

Version

1.0.0

Modified

19/02/2025

Distribution release date

13/01/2026

Citation Requirements

This publication uses data from WMSDE, an ethically approved NHS Secure Data Environment (NRES Reference 24/YH/0022)

Coverage

Start date

01/01/2021

End date

31/12/2023

Time lag

Variable

Geographic coverage

West Midlands

Accessibility

Language

en

Alignment with standardised data models

LOCAL, NHS DATA DICTIONARY

Controlled vocabulary

ICD10, OPCS4, SNOMED CT

Format

SQL

Data Access Request

Dataset pipeline status

Not available

Access rights

Information Governance and Ethics - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/information-governance-and-ethics)

Time to dataset access

Variable

Access request cost

Please email wmsde@uhb.nhs.uk

Access method category

TRE/SDE

Access service description

Data Request Process - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/research/data-request)

Jurisdiction

GB

Data use limitation

Research use only

Data use requirements

Project-specific restrictions,User-specific restriction

Dataset Types: Health and disease

Collection Sources: Clinic, Community, Prescribing - Community pharmacy, Prescribing - Hospital, Secondary care - Accident and Emergency, Secondary care - ICU, Secondary care - In-patients, Secondary care - Outpatients