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White Swan UK Oncology Online Patient & Public Conversations Dataset
Population Size
118,984
People
Years
2023
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Lead time
1-2 months
Summary
Documentation
The dataset contains anonymised patient and public conversation which has taken place online regarding over 50 cancer types (This includes cancers most commonly experienced and rarer types).
The curation of the dataset is based on specific cancer types and cancer patient forums. It is not based on every social post about cancer within the online sources, which is often irrelevant to the patient experience.
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Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Persons in this dataset are determined by the unique volume of chosen display names in the data. This is calculated per source (reddit, reviews, other forums), and then totaled together. In other forums and reviews domains persons may choose to denote themselves as anonymous. In this case, anonymous users are counted once per domain. For example, on 'https://healthunlocked.com/lungcancer'. | 118984 | Unique online names indicating number of persons | 16 Apr 2025 |
Provenance
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Structural Metadata
Details
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Version
Modified
07/04/2025
Citation Requirements
Coverage
Start date
01/03/2023
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