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White Swan UK Oncology Online Patient & Public Conversations Dataset

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White Swan

Population Size

118,984

People

Population Size statistic card

Years

2023

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

Documentation

Dataset type

Health and disease, Treatments/Interventions, Measurements/Tests, Imaging types, Socioeconomic, Lifestyle

Dataset population size

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Persons in this dataset are determined by the unique volume of chosen display names in the data. This is calculated per source (reddit, reviews, other forums), and then totaled together. In other forums and reviews domains persons may choose to denote themselves as anonymous. In this case, anonymous users are counted once per domain. For example, on 'https://healthunlocked.com/lungcancer'.

118984

Unique online names indicating number of persons

16 Apr 2025

Provenance

Purpose of dataset collection

Source of data extraction

Collection source setting

Image contrast

Biological sample availability

Structural Metadata

Details

Publishing frequency

Version

Modified

07/04/2025

Citation Requirements

Coverage

Start date

01/03/2023

Time lag

Geographic coverage

Maximum age range

Follow-up

Accessibility

Language

Alignment with standardised data models

,

Controlled vocabulary

, ,

Format

, ,

Data Access Request

Dataset pipeline status

Access rights

Time to dataset access

Access request cost

Access method category

Access service description

Jurisdiction

Data use limitation

Data use requirements

Data Controller

Data Processor

Dataset Types: Health and disease, Treatments/Interventions, Measurements/Tests, Imaging types, Socioeconomic, Lifestyle

Dataset Sub-types: Cancer


Data Custodian: White Swan

Collection Sources: Other