Bookmarks
Sarcoidosis
Population Size
Not reported
Years
2022
Associated BioSamples
None/not available
Geographic coverage
International
Lead time
2-6 months
Summary
The aim of the project is to accelerate the development of lung disease treatments to improve outcomes for all patients. This is the first time that significant volumes of data from minority ethnic people will be structured and made available for complex lung disease research and drug development.
Documentation
Idiopathic Pulmonary Fibrosis (IPF) is a type of complex lung disease that affects roughly 50 in every 100,000 people. It causes the lungs to become scarred, leading to severe breathlessness and coughing, and owing to a lack of effective medicines and treatments, it currently has a survival time worse than most cancers. Applying cutting-edge AI tools, to unlock insights from existing IPF patient data, could help extend the lives of thousands of UK patients each year.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Provenance
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Static
Version
1.0.0
Modified
30/04/2025
Citation Requirements
SDE031
Coverage
Start date
01/09/2022
Time lag
2-6 months
Geographic coverage
International
Accessibility
Language
en
Alignment with standardised data models
LOCAL
Controlled vocabulary
LOCAL
Format
SQL
Data Access Request
Dataset pipeline status
Not available
Access rights
Information Governance and Ethics - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/information-governance-and-ethics)
Time to dataset access
2-6 months
Access request cost
Please email wmsde@uhb.nhs.uk
Access method category
TRE/SDE
Access service description
Data Request Process - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/research/data-request)