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Primary Care Data - North East and North Cumbria
Population Size
Not reported
Years
2020
Associated BioSamples
None/not available
Geographic coverage
General practices across the North East and North Cumbria region
Lead time
2-6 months
Summary
The NENC Primary Care Data Collection comprises routinely collected primary care records from general practices across the North East and North Cumbria region. The dataset includes patient demographics, coded clinical events (e.g. diagnoses, symptoms), prescribing information, test results, referrals, vaccination records, and preventive care activity.
Documentation
This dataset is essential for population health research, service planning, and evaluation of primary care interventions. It enables linkage to other regional datasets (e.g. secondary care, ambulance, community services) to support end-to-end pathway analysis. All data are pseudonymised before being made available within the Secure Data Environment and exclude directly identifiable information.
Dataset type
Health and disease, Treatments/Interventions, Measurements/Tests
Dataset sub-type
Mental health, Cardiovascular, Musculoskeletal, Others, Vaccines, Preventive
Keywords
Provenance
Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Primary care - Clinic, Primary care - Referrals, Primary care - Out of hours
Patient pathway description
The patient pathway in primary care begins with registration at a GP practice, where core demographic information and any known clinical history are recorded. Patients may access services through in-person appointments, telephone consultations, or online systems. During each contact, GPs and other practice staff record coded entries for symptoms, diagnoses, prescriptions, referrals, and results. Patients may be referred to secondary care, community services, or social care, with relevant details recorded in the GP system. Ongoing care includes regular reviews, medication management, vaccinations, screening, and long-term condition monitoring. GP data therefore provides a continuous, foundational record of each patient’s interaction with the NHS.
Image contrast
Not stated
Biological sample availability
None/not available
Details
Publishing frequency
Monthly
Version
1.0.0
Modified
02/05/2025
Coverage
Start date
01/04/2020
Time lag
1-2 months
Geographic coverage
General practices across the North East and North Cumbria region
Accessibility
Language
en
Alignment with standardised data models
OMOP
Controlled vocabulary
SNOMED CT
Format
application/sql
Data Access Request
Dataset pipeline status
Available
Access rights
In Progress
Time to dataset access
2-6 months
Access method category
TRE/SDE
Jurisdiction
UK
Data use limitation
No restriction
Data Controller
NHS North East and North Cumbria Integrated Care Board
Data Processor
NHS North of England Commissioning Support Unit