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Primary Care Data - North East and North Cumbria

Population Size

Not reported
Population Size statistic card

Years

2020

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

General practices across the North East and North Cumbria region

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

The NENC Primary Care Data Collection comprises routinely collected primary care records from general practices across the North East and North Cumbria region. The dataset includes patient demographics, coded clinical events (e.g. diagnoses, symptoms), prescribing information, test results, referrals, vaccination records, and preventive care activity.

Documentation

This dataset is essential for population health research, service planning, and evaluation of primary care interventions. It enables linkage to other regional datasets (e.g. secondary care, ambulance, community services) to support end-to-end pathway analysis. All data are pseudonymised before being made available within the Secure Data Environment and exclude directly identifiable information.

Dataset type

Health and disease, Treatments/Interventions, Measurements/Tests

Keywords

Provenance

Purpose of dataset collection

Care

Source of data extraction

EPR

Collection source setting

Primary care - Clinic, Primary care - Referrals, Primary care - Out of hours

Patient pathway description

The patient pathway in primary care begins with registration at a GP practice, where core demographic information and any known clinical history are recorded. Patients may access services through in-person appointments, telephone consultations, or online systems. During each contact, GPs and other practice staff record coded entries for symptoms, diagnoses, prescriptions, referrals, and results. Patients may be referred to secondary care, community services, or social care, with relevant details recorded in the GP system. Ongoing care includes regular reviews, medication management, vaccinations, screening, and long-term condition monitoring. GP data therefore provides a continuous, foundational record of each patient’s interaction with the NHS.

Image contrast

Not stated

Biological sample availability

None/not available

Details

Publishing frequency

Monthly

Version

1.0.0

Modified

02/05/2025

Coverage

Start date

01/04/2020

Time lag

1-2 months

Geographic coverage

General practices across the North East and North Cumbria region

Accessibility

Language

en

Alignment with standardised data models

OMOP

Controlled vocabulary

SNOMED CT

Format

application/sql

Data Access Request

Dataset pipeline status

Available

Access rights

In Progress

Time to dataset access

2-6 months

Access method category

TRE/SDE

Jurisdiction

UK

Data use limitation

No restriction

Data Controller

NHS North East and North Cumbria Integrated Care Board

Data Processor

NHS North of England Commissioning Support Unit

Dataset Types: Health and disease, Treatments/Interventions, Measurements/Tests

Dataset Sub-types: Mental health,Cardiovascular,Musculoskeletal,Others, Vaccines,Preventive

Collection Sources: Primary care - Clinic, Primary care - Referrals, Primary care - Out of hours