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Clinical genetics clinical information

Population Size

17,307

People

Population Size statistic card

Years

2016

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

Thames Valley and Surrey

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

Laboratory Information Management System (LIMS) for clinical genetics held in StarLIMS (post-2021) and HICOM (pre-2021)

Documentation

Clinical genetics tests, investigations and associated results and reports

Dataset type

Health and disease, Treatments/Interventions, Measurements/Tests

Dataset sub-type

Rare diseases, Laboratory, Other diagnostics, Genomics

Dataset population size

17307

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

17307

Count

31 Mar 2025

Provenance

Purpose of dataset collection

Care

Source of data extraction

EPR

Collection source setting

Secondary care - Outpatients, Secondary care - In-patients

Image contrast

Not stated

Biological sample availability

None/not available

Details

Publishing frequency

Continuous

Version

1.0.0

Modified

08/05/2025

Coverage

Start date

01/01/2016

Time lag

Less than 1 week

Geographic coverage

Thames Valley and Surrey

Maximum age range

150

Follow-up

Continuous

Accessibility

Language

en

Alignment with standardised data models

NHS DATA DICTIONARY, LOCAL

Controlled vocabulary

LOCAL, OPCS4, DM+D, NHS NATIONAL CODES, ICD10

Format

text/comma-separated-values

Data Access Request

Dataset pipeline status

Available

Access rights

https://thamesvalleyandsurreyhealthandcaredata.nhs.uk/

Time to dataset access

1-2 months

Access method category

TRE/SDE

Jurisdiction

UK

Data use limitation

No restriction

Data use requirements

Project-specific restrictions,User-specific restriction

Data Controller

Thames Valley and Surrey Secure Data Environment (SDE)

Data Processor

Thames Valley and Surrey Secure Data Environment (SDE)

Dataset Types: Health and disease, Treatments/Interventions, Measurements/Tests

Dataset Sub-types: Rare diseases, Laboratory, Other diagnostics, Genomics

Collection Sources: Secondary care - Outpatients, Secondary care - In-patients