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National Unified Renal Translational Research Enterprise - NURTuRE (NCKD)

Population Size

Not reported
Population Size statistic card

Years

2017 - 2023

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

Wales

England

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

Collection of samples and data across the following diseases: Chronic kidney disease (disorder), Nephrotic syndrome (disorder) - to support carefully selected studies designed to improve the future of kidney disease care. Welsh participants can be linked to SAIL datasets. Prospective applicants will need to contact NURTuRE and apply to the NURTuRE Scientific Board for permission to use this dataset.

Documentation

The NURTuRE project was devised to create a national kidney biobank as recommended in the UK Renal Research Strategy 2016. Strategic Aims: To work towards achieving this NURTuRE will:

  • Create a national Kidney Bio Bank for collection and storage of biological samples from 3,000 CKD patients and up to 800 NS patients, to provide a strategic resource for fundamental and translational research.
  • Develop and implement proactive UK protocol driven cohort studies in CKD and NS to investigate determinants of and risk factors for clinically important adverse outcomes.
  • Engage patient cohorts, with consent to approach for any future research study. NURTuRE Objectives:
  • The provision of comprehensive clinical and laboratory data from cohort studies.
  • The provision of high quality bio-samples with centralised storage/retrieval.
  • To carry out core biomarker analysis of biopsy specimens in biofluids of all patients recruited and parallel assessment.
  • Follow-up specimen collection. First patient recruitment - By 31 June 2017 CKD - baseline and 100 % follow up collections, over 2 years NS: baseline and 20% follow up - over 3 years. Healthy Volunteers - baseline

Biological samples availability - Samples are available via the NURTuRE biobank - https://nurturebiobank.org/

Dataset type

Health and disease, Treatments/Interventions

Dataset sub-type

Renal and urogenital, Preventive

Keywords

Provenance

Purpose of dataset collection

Research cohort

Source of data extraction

EPR

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Irregular

Version

1.0.0

Modified

24/07/2025

Citation Requirements

NURTuRE

Coverage

Start date

30/06/2017

End date

31/07/2023

Time lag

Other

Geographic coverage

Wales, England, Scotland

Maximum age range

150

Follow-up

Unknown

Accessibility

Language

en

Format

SQL database table

Data Access Request

Dataset pipeline status

Available

Time to dataset access

2-6 months

Access request cost

Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.

Access service description

The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.

Jurisdiction

UK

Data use limitation

General research use

Data Controller

SAIL

Data Processor

SAIL

Dataset Types: Health and disease, Treatments/Interventions

Dataset Sub-types: Renal and urogenital, Preventive


Collection Sources: