HDR UK Gateway
HDR Gateway logo

Bookmarks

Genomics England - Secondary Data - NHSE

Population Size

72,874

People

Population Size statistic card

Years

1971 - 2022

Years statistic card

Associated BioSamples

DNA

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

NHS national data sets collect information from care records, systems and organisations on specific areas of health and care.

Documentation

Secondary data tables are the corpus of curated data we receive from national data warehouses for all eligible participants not belonging in a data restricting cohort and not registered in Northern Ireland, Wales or Scotland. They are mostly longitudinal in nature and agnostic to the recruited disease. Data at the point of release captures all activity contained in the period covered within each of the datasets up to the latest quarter published by NHSE and end of calendar year for PHE/NCRAS.

Please Note: The linking files MHbridge and DIDbridge will no longer be provided as part of the main programme release. Participant id is already been included in all tables making these files redundant.

  • HES: Hospital Episode Statistics containing details of all commissioned activity during admissions, outpatient appointments and A&E attendances.
  • DID: Metadata (demographics, modalities, ordering entity and dates) on diagnostic imaging tests collated from local radiology information systems.
  • MORTALITY/CANCER_REGISTRY: Office of National Statistics registry data for cancer registrations and deaths inside and outside hospitals. Issue of death certificates and cancer network registrations are a requirement for an entry to these manifests.
  • COVID: Data on covid test results for 100K participants. Pre Data Release V14 this data was found in the frequent release folder. For more information please see Clinical and phenotype data Secondary Data - COVID.
  • MHMDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is up to March '14.
  • MHLDDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is from March '14 to March '16.
  • MHSDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset us from March '16 to March '19.

Dataset type

Health and disease

Dataset population size

72874

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Rare Disease Participants

72874

Count

30 Mar 2023

Persons

Cancer Participants

15624

Count

30 Mar 2023

Findings

Cancer Germline - Number of genomes

32753

Count

30 Mar 2023

Findings

Cancer Tumour - Number of genomes

17003

Count

30 Mar 2023

Findings

Rare Disease - Number of genomes

73517

Count

30 Mar 2023

Provenance

Purpose of dataset collection

Administrative, Care

Source of data extraction

EPR, Other

Collection source setting

Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients

Patient pathway description

Secondary care.

Image contrast

Not stated

Biological sample availability

DNA

Structural Metadata

Details

Publishing frequency

Quarterly

Version

19.0.2

Modified

04/02/2026

Distribution release date

30/03/2023

Citation Requirements

NHS Digital

Coverage

Start date

07/09/1971

End date

04/08/2022

Time lag

2-6 months

Geographic coverage

United Kingdom, England

Maximum age range

150

Follow-up

> 10 Years

Accessibility

Language

en

Alignment with standardised data models

NHS DATA DICTIONARY

Controlled vocabulary

OPCS4, READ, SNOMED CT, NHS NATIONAL CODES, ODS, ICD10

Format

Multiple Formats Available

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

2-6 months

Access request cost

Fees will be dependent on the type of access that is necessary. Raw data is not eligible for export. Summary-level data may be exported provided that it is approved through the Genomics England Airlock Process

Access service description

More information about the Genomics England Research Environment can be found here:

https://www.genomicsengland.co.uk/research

Genomics England 100k participants have consented to longitudinal lifetime followup and recontact safely through our clinical network. BRST (Bioinformatics Research Services) are a team of bioinformatics who know the dataset inside out and provide consultancy projects on a case by case basis. Our network of clinical and medical experts can be made available on case by case basis. Researchers have the opportunity to work with our and access the GeCIP network who are a community of world-leading experts in specific cancers and rare diseases.

Data use limitation

General research use

Data use requirements

Ethics approval required,Project-specific restrictions,Publication moratorium

Data Controller

NHS DIGITAL

Data Processor

GENOMICS ENGLAND

Dataset Types: Health and disease


Collection Sources: Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients

Relationships: