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The impact of multimorbidity on care pathways during COPD hospitalisations

Population Size

846

People

Years

2018 - 2018

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

Not applicable

Summary

Deeply phenotyped data on patients hospitalised with COPD with and without other conditions to map pathways and outcomes. Granular multi-morbidity data, investigations, investigations and treatments. Serial physiology, laboratory results, outcomes.

Documentation

Many patients admitted to hospital have multiple long-term conditions (MLTCs), also known as multimorbidity. Despite this, care delivery in hospital is designed for the treatment of single conditions. Often, the care of patients with multimorbidity can be unsatisfactory, inefficient and expensive.

Chronic Obstructive Pulmonary Disease (COPD) is associated with a high burden of co-morbidities which tend to co-exist in specific disease clusters. Recognising their presence enables holistic patient management, but also offers opportunities to identify common biological mechanisms across diseases which might be therapeutically targetable.

The most common comorbidities in COPD include cardiovascular disease, diabetes, depression and osteoporosis. Often presentations are badged as exacerbations and alternative causes of breathlessness are missed.

This dataset includes 846 patients with COPD admitted to hospital. The infographic includes data from 01/01/2018 to 31/12/2018, but data is available from the past 10 years+. Data includes detailed demography, presenting symptoms, co-morbidities, admission diagnosis, laboratory tests, serial physiology, prescribed and administered drugs, use of non-invasive and invasive ventilation, and outcomes. Data can be matched to lung function for a proportion of patients.

PIONEER geography: The West Midlands (WM) has a population of 5.9 million & includes a diverse ethnic & socio-economic mix.

UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & an expanded 250 ITU bed capacity during COVID. UHB runs a fully electronic healthcare record (EHR) (PICS Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.

Scope: All patients admitted to hospital for COPD exacerbations. Longitudinal & individually linked, so that the preceding & subsequent health journey can be mapped & healthcare utilisation prior to & after admission understood. The dataset includes highly granular patient demographics, co-morbidities taken from ICD-10 & SNOMED-CT codes. Serial, structured data pertaining to process of care (timings, admissions, wards), presenting complaint, physiology readings (temperature, BMI, blood pressure, respiratory rate, NEWS2 score, oxygen saturations and others), Sample analysis results (urea, albumin, platelets, white blood cells and others) drug administered and all outcomes. Linked images available (radiographs, CT scans, MRI).

Available supplementary data: Matched controls ambulance, OMOP data, synthetic data.

Available supplementary support: Analytics, Model build, validation & refinement A.I. Data partner support for ETL (extract, transform & load) process, Clinical expertise, Patient & end-user access, Purchaser access, Regulatory requirements, Data-driven trials, “fast screen” services.

Dataset type
Health and disease, Treatments/Interventions
Dataset sub-type
Respiratory
Dataset population size
846

Keywords

Multiple long term conditions, COPD, Chronic Obstructive Pulmonary Disease, Co morbidity, Cardiovascular Disease, Diabetes, renal disease, osteoporosis, patient pathways, multimorbidity, MLTCs, ward transfers, outliers, ventilation, NIV, ITU, physiology, NEWS2, blood pressure, laboratory results, arterial blood gas, Oxygen, nebulisers, salbutamol, prednisolone, antibiotics

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

846 admissions of worsening COPD between 01-01-2018 to 31-12-2018

846

Count

17 Dec 2021

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Secondary care - Accident and Emergency, Secondary care - In-patients, Secondary care - Outpatients
Patient pathway description
Data is representative of the multi-ethnicity population within the West Midlands (42% non white). Data includes all patients admitted during this timeframe, with National data Opt Outs applied, and therefore is representative of admissions to secondary care. Data focuses on in-patient stay in hospital during the acute episode but can be supplemented on request to include previous and subsequent hospital contacts (including outpatient appointments) and ambulance, 111, 999 data.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Quarterly
Version
1.0.0
Modified

08/10/2024

Distribution release date

17/12/2021

Citation Requirements
This publication uses data from PIONEER, an ethically approved database and analytical environment (East Midlands Derby Research Ethics 20/EM/0158)

Coverage

Start date

01/01/2018

End date

31/12/2018

Time lag
Other
Geographic coverage
United Kingdom, England, West Midlands
Minimum age range
20
Maximum age range
95
Follow-up
1 - 10 Years

Accessibility

Language
en
Alignment with standardised data models
LOCAL
Controlled vocabulary
SNOMED CT, ICD10
Format
SQL

Data Access Request

Dataset pipeline status
Available
Time to dataset access
Not applicable
Access request cost
www.pioneerdatahub.co.uk/data/data-services-costs/
Access method category
TRE/SDE
Access service description

Trusted Research Environments (TRE) are built using Microsoft Azure services and hosted in the UK to provide research teams a safe, secure and agile environment which allows users to quickly analyse, interpret and form an enriched view of primary care information through a range of integrated datasets.

Health data collated from multiple sources is ingested into a secure data lake which will then allow subsets of data to be made available to research teams on approval of a data request. Once approved a customer specific TRE is made available with a standard set of leading analytical tools from Microsoft including Azure Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale data warehouses). Specific tools can be provided at an additional cost over the standard platform data access charge and the PIONEER team will work with you to determine your exact needs.

Access to the TRE is managed using the latest virtual desktop technology to provide a safe and secure end-user experience. By utilising leading edge design PIONEER are able to create TREs rapidly to enable us to service any customer requirement.

Jurisdiction
GB-ENG
Data use limitation
General research use
Data use requirements
Project-specific restrictions
Data Controller
University Hospitals Birmingham NHS Foundation Trust

Dataset Types: Health and disease, Treatments/Interventions

Dataset Sub-types: Respiratory


Collection Sources: No collection sources listed