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Respiratory social media database

Population Size

Not reported

Years

1905 - 2016

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Lead time

Variable

Summary

The QMUL-LSI-RSM respiratory social media is a database for multidisciplinary research aimed to improve understanding of unmet needs of people with asthma and asthma self-management.

Documentation

The QMUL-LSI-RSM respiratory social media is a database for multidisciplinary research aimed to improve understanding of unmet needs of people with asthma and asthma self-management. It includes 875,151 anonymised posts from 23,182 users of the Asthma UK (10 years of data) and British Lung Foundation online communities (4 years of data).

The datasets includes publicly shared posts and their metadata (ie, the anonymized user ID numbers), user roles (eg, user, administrator, or moderator), date of posting, the hierarchical level of the post within the corresponding thread, and the dates in which the users joined and left the community.

  • Asthma UK: Date from to 02/03/2006-06/09/2016 (548 weeks)
  • Total number of users, n = 3,345
  • Total number of posts, n = 32,780
  • Number of posts per user, mean (SD) = 14.2 (55.0)
  • Posts contributed by top 1% superusers, n (%) = 10,457 (31.9)
  • Number of connections per user, mean (SD) = 2.1 (5.9)
  • Number of connections per user, median (SD) = 1.0 (69.0)
  • British Lung Foundation Date from to 13/04/2012-06/09/2016 (230 weeks)
  • Total number of users, n = 19,837
  • Total number of posts, n = 875,151
  • Number of posts per user, mean (SD) = 66.9 (75.1)
  • Posts contributed by top 1% superusers, n (%) = 426,198 (48.7)
  • Number of connections per user, mean (SD) = 17.6 (69.0)
  • Number of connections per user, median (SD) = 1.0 (69.0)

See complete information in Table 1 at https://www.jmir.org/2018/7/e238/

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

asthma, COPD, health social media, online health communities

Provenance

Purpose of dataset collection
Study
Collection source setting
Other
Image contrast
Not stated
Biological sample availability
None/not available

Details

Publishing frequency
Other
Version
1.0.0
Modified

08/10/2024

Citation Requirements
Queen Mary University of London

Coverage

Start date

28/06/1905

End date

01/01/2016

Time lag
Not applicable
Geographic coverage
United Kingdom
Maximum age range
100

Accessibility

Language
en
Controlled vocabulary
LOCAL

Data Access Request

Dataset pipeline status
Not available
Access rights
To be determined upon data access request
Time to dataset access
Variable
Access method category
TRE/SDE
Access service description
To be determined upon data access request
Jurisdiction
GB-ENG, GB-SCT, GB-WLS
Data use limitation
General research use
Data Controller
BREATHE

Dataset Types: Health and disease


Collection Sources: Other