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PHM and Cancer Outcomes in the WYH Cancer Alliance

Population Size

Not reported
Population Size statistic card

Years

2019

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

The purpose of this data set is to enable the sharing of de-identified patient data, for the Population Health Management and Cancer Outcomes in the West Yorkshire and Harrogate Cancer Alliance (WY&H CA).

Documentation

Improving cancer outcomes are an explicit priority for the WH&H CA. The high-level outcomes of one-year survival, emergency presentation, stage at diagnosis, and patient experience have been endorsed by the alliance board and the system leadership of the Health and Care Partnership (ICS). The aims are to use data on outcomes to drive policy, service development and improvement and the use of granular data by tumour site to understand the impact of clinical decisions on patient outcomes and actively engage with clinicians through the Optimum Pathway Groups.

The Yorkshire and Humber LHCRE has developed and funded a secure, cloud-based environment to support the analysis of clinical data from across the region. The LHCRE has prioritised cancer as one of its two key domains with a specific focus on population health analyses that can support the development and delivery of improved pathway of care. This capability will be used to develop a real time analysis of cancer data and its outcomes.

The work will be carried out in partnership with the NHS to ensure that the products of this capability links directly with the ability to influence decisions on resources used in WY&H CA to improve cancer outcomes.

The inputs required for this are the real-time (?7 days) data on cancer waiting times data (CWT), cancer outcomes and services dataset (COSD) and the Systemic Anticancer Treatment dataset (SACT) submissions and Radio Therapy (RT) Care by provider. These datasets are already captured by hospitals across the region and hence no new data collection is proposed at this time. These datasets will continue to be submitted to support national analyses supporting audit and registration.

The outputs will be developed as a suite of dashboards which will allow each provider and the alliance as a whole to monitor trends and changes in CWT, emergency presentation and stage at diagnosis by cancer type, and a rolling 3 and 12-month survival analysis.

The data will be handled within the Google Cloud Platform (GCP) in the following containers that are located in data centres in London, UK:

Dataset type

Health and disease

Dataset sub-type

Not applicable

Keywords

Provenance

Purpose of dataset collection

Care

Source of data extraction

EPR

Collection source setting

Clinic, Secondary care - Outpatients, Secondary care - In-patients, Services, Community

Patient pathway description

Cancer Clinical Pathway: including cancer waiting times data (CWT), cancer outcomes and services dataset (COSD) and the Systemic Anticancer Treatment dataset (SACT) submissions and Radio Therapy (RT) Care by provider.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Continuous

Version

1.0.0

Modified

08/10/2024

Distribution release date

03/01/2021

Citation Requirements

West Yorkshire and Harrogate Cancer Alliance DATA-CAN YHCR

Coverage

Start date

01/01/2019

Time lag

2-4 weeks

Geographic coverage

United Kingdom, England, Yorkshire and The Humber

Maximum age range

150

Follow-up

10 Years

Accessibility

Language

en

Controlled vocabulary

OPCS4, SNOMED CT, ICD10

Format

text/csv, text/xml

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

1-2 months

Access request cost

Calculated on individual basis

Access method category

Varies based on project

Access service description

The outputs will be developed as a suite of dashboards which will allow each provider and the alliance as a whole to monitor trends and changes in CWT, emergency presentation and stage at diagnosis by cancer type, and a rolling 3 and 12-month survival analysis. The data will be handled within the Google Cloud Platform (GCP) in the following containers that are located in data centres in London, UK. For access see www.yhcr.org

Data use limitation

General research use

Data use requirements

Collaboration required,Geographical restrictions,User-specific restriction

Data Controller

West Yorkshire Cancer Alliance

Data Processor

Yorkshire and Humber Care Record via Humber Teaching NHS FT

Dataset Types: Health and disease


Collection Sources: Clinic, Secondary care - Outpatients, Secondary care - In-patients, Services, Community

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