Bookmarks
Brecon Dataset (BREC)
Population Size
Not reported
Years
1979 - 2021
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Wales
Lead time
2-6 months
Summary
A register of children diagnosed with type 1 diabetes, collected from Paediatric diabetes clinics in Wales. Maintained by the Brecon Group. Data has been collected since 1995 and is complete since then, but some people diagnosed earlier are also included.
Documentation
A register of children diagnosed with type 1 diabetes in Wales, collected from Paediatric diabetes clinics in Wales. Maintained by the Brecon Group. Two capture-recapture studies have been done showing >97% completeness for type 1 diabetes diagnoses in Wales. Data has been collected since 1995 and is complete since then, but some people diagnosed earlier are also included.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Keywords
Diabetes, Paediatric, SAIL, Brecon, Children, core-res, Children & Young People, Health & Wellbeing, Growing Old
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Events | Approx 70-80% coverage of Welsh population through GP registrations. | 3000000 | Count | 31 Aug 2021 |
Provenance
Source of data extraction
EPR
Collection source setting
Clinic
Patient pathway description
Secondary care
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Annual
Version
9.0.0
Modified
08/10/2024
Citation Requirements
["Brecon Group"]
Coverage
Start date
05/06/1979
End date
18/04/2021
Time lag
1-2 months
Geographic coverage
United Kingdom, Wales
Maximum age range
19
Follow-up
1 - 10 Years
Accessibility
Language
en
Controlled vocabulary
LOCAL
Format
SQL database table
Data Access Request
Dataset pipeline status
Not available
Time to dataset access
2-6 months
Access request cost
Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.
Access method category
TRE/SDE
Access service description
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdiction
GB
Data use limitation
General research use
Data use requirements
Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Brecon Group
Data Processor
SAIL Databank