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Brecon Dataset (BREC)

Population Size

Not reported
Population Size statistic card

Years

1979 - 2021

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Wales

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

A register of children diagnosed with type 1 diabetes, collected from Paediatric diabetes clinics in Wales. Maintained by the Brecon Group. Data has been collected since 1995 and is complete since then, but some people diagnosed earlier are also included.

Documentation

A register of children diagnosed with type 1 diabetes in Wales, collected from Paediatric diabetes clinics in Wales. Maintained by the Brecon Group. Two capture-recapture studies have been done showing >97% completeness for type 1 diabetes diagnoses in Wales. Data has been collected since 1995 and is complete since then, but some people diagnosed earlier are also included.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Associated media

https://saildatabank.com/about-us/https://popdatasci.swan.ac.uk/centres-of-excellence/sail/https://www.youtube.com/watch?v=ZK9-Jw3uVkwhttps://saildatabank.com/https://docs.hiru.swan.ac.uk/display/SATP/BREC+-+Brecon+Dataset

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

Approx 70-80% coverage of Welsh population through GP registrations.

3000000

Count

31 Aug 2021

Provenance

Source of data extraction

EPR

Collection source setting

Clinic

Patient pathway description

Secondary care

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Annual

Version

9.0.0

Modified

08/10/2024

Citation Requirements

["Brecon Group"]

Coverage

Start date

05/06/1979

End date

18/04/2021

Time lag

1-2 months

Geographic coverage

United Kingdom, Wales

Maximum age range

19

Follow-up

1 - 10 Years

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

SQL database table

Data Access Request

Dataset pipeline status

Not available

Access rights

https://saildatabank.com/data/apply-to-work-with-the-data/

Time to dataset access

2-6 months

Access request cost

Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.

Access method category

TRE/SDE

Access service description

The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.

Jurisdiction

GB

Data use limitation

General research use

Data use requirements

Project-specific restrictions,Time limit on use,User-specific restriction

Data Controller

Brecon Group

Data Processor

SAIL Databank

Dataset Types: Health and disease

Collection Sources: Clinic

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