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Welsh Cancer Intelligence and Surveillance Unit (WCSU)

Population Size

Not reported
Population Size statistic card

Years

1994 - 2021

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Wales

Geographic coverage statistic card

Lead time

Other

Lead time statistic card

Summary

The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated.

Documentation

The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated. Cancer registration in Wales began almost five decades ago and today’s electronic database which holds records going back to 1972 contains in the region of 686,000 records.

WCISU collects data about occurrences of cancer in Welsh residents via direct or indirect submissions from Welsh Hospitals.

Staging of malignant melanoma (ICD 10 code C43), breast (C50), colorectal (C18-C20) and cervix (C53) started in 2001 since this was when we started receiving pathological information. Staging for all other cancers started in 2010.

Treatment information started in 1995.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Associated media

https://saildatabank.com/about-us/https://popdatasci.swan.ac.uk/centres-of-excellence/sail/https://saildatabank.com/https://docs.hiru.swan.ac.uk/display/SATP/WCSU+-+Welsh+Cancer+Intelligence+and+Surveillance+Unit

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated.

714794

Welsh Cancer Neoplasm and Treatment Events

19 Jul 2021

Provenance

Source of data extraction

EPR

Collection source setting

Primary care - Clinic

Patient pathway description

All pathways about cancer

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Annual

Version

12.0.0

Modified

08/10/2024

Distribution release date

30/05/2019

Citation Requirements

Welsh Cancer Intelligence & Surveillance Unit (WCISU) which is a part of Public Health Wales (PHW)

Coverage

Start date

01/01/1994

End date

04/02/2021

Time lag

1-2 months

Geographic coverage

United Kingdom, Wales

Maximum age range

150

Follow-up

Unknown

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

SQL database table

Data Access Request

Dataset pipeline status

Available

Access rights

https://saildatabank.com/data/apply-to-work-with-the-data/

Time to dataset access

Other

Access request cost

Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.

Access method category

TRE/SDE

Access service description

The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.

Jurisdiction

GB

Data use limitation

General research use,Research-specific restrictions

Data use requirements

Project-specific restrictions

Data Controller

Digital Health and Care Wales (DHCW)

Data Processor

SAIL Databank

Dataset Types: Health and disease

Collection Sources: Primary care - Clinic

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