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Cancer Network Information System (CNIS / CANISC)

Population Size

Not reported
Population Size statistic card

Years

1990 - 2025

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Wales

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

Cancer Network Information System includes multidisciplinary team diagnosis, proposed treatments, and a system-generated summary of the patient’s cancer record.

Documentation

Cancer Network Information System Cymru (CaNISC) includes multidisciplinary team diagnosis, proposed treatments, and a system-generated summary of the patient’s cancer record.

The core system used across Wales has been CaNISC. This system provided the cancer patient record of treatment, the patient administration system for Velindre Cancer Centre, and was the primary source of cancer data for waiting times, clinical audit, and cancer registration.

Velindre Cancer Centre successfully migrated from CaNISC onto the new Cancer Informatics System (CIS) in November 2022.

Why is CaNISC being replaced?

Whilst CaNISC allowed multiple organisations to record the diagnosis, treatment and follow-up care information for a patient, it could only be accessed by approximately 2000 authorised health care professionals. Patients receive care in many settings outside of the cancer centres and their cancer care clinical information was often not available to other health professionals treating patients for other health related issues in other care settings.

CaNISC approached the end of its viable service as it could no longer be updated to keep pace with changing clinical practices and processes. The 2018 Cancer Delivery Plan for Wales included an action to explore the replacement of CaNISC, resulting in a business case being submitted to the Welsh Government to develop a new Cancer Information System for Wales.

Welsh Government agreed a £6.5 million investment from the Digital Priorities Investment Fund in 2019 spanning three financial years, working with Digital Health and Care Wales (DHCW), health boards and trusts to deliver the Cancer Informatics Programme.

A Data Explained report on CNIS can be found here: https://adrwales.org/wp-content/uploads/2025/02/Data_Explained_CNIS.pdf

Dataset type

Health and disease

Dataset sub-type

Not applicable

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Findings

800000

Count

01 Jan 2025

Provenance

Collection source setting

Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients

Patient pathway description

All pathways pertaining to cancer

Image contrast

Not stated

Biological sample availability

None/not available

Details

Publishing frequency

Monthly

Version

14.0.0

Modified

08/10/2024

Citation Requirements

Digital Health and Care Wales

Coverage

Start date

01/01/1990

End date

04/05/2025

Time lag

2-6 months

Geographic coverage

United Kingdom, Wales

Maximum age range

120

Follow-up

Unknown

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

SQL database table

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

2-6 months

Access request cost

Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.

Access method category

TRE/SDE

Access service description

The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.

Jurisdiction

GB-GB

Data use limitation

Research-specific restrictions

Data use requirements

Project-specific restrictions

Data Controller

NHS, SAIL Databank

Data Processor

SAIL Databank

Dataset Types: Health and disease


Collection Sources: Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients

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