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North West London Primary Care Events Data (NWL PCE)

Population Size

2,644,802

People

Years

2015

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

...see more

Lead time

1-2 months

Summary

The NWL Primary Care Events holds coded interactions between NWL registered patients and GP using EMIS or S1. This includes all clinical and non-clinical events the GPs have recorded for the patient, the data has now got SNOMED codes incorporated.

Documentation

Organisations we collect information for include:

NHS England - information is used to collect GP payments, based on achievements under the Quality and Outcomes Framework (QOF) and the delivery of quality services other government departments - for information about certain medical conditions and GP activity universities and other organisations - for academic research and services such as screening programmes The systems that we use to collect data and information include:

General Practice Extraction Service (GPES) - used to collect information and data Calculating Quality Reporting Service (CQRS) - to record practice participation and to process and display information GP clinical systems - to record information at practice level We are responsible for producing and maintaining the extract specification (business rules) to enable the extraction of these services.

Interaction between a patient and the practice they are registered to

All Appointments data

All clinical diagnostics data

All administrative activity related to patients communication with practice

All test results related to patients

All screening information related to patients

Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
2644802

Keywords

General Practice, GP, Discover-NOW, Integrated Care, Pathway, Real World data, Linked longitudinal

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Population

2644802

Count

08 Dec 2020

Persons

Registered population

2737753

count

20 Oct 2022

Provenance

Source of data extraction
EPR
Collection source setting
Primary care - Clinic
Patient pathway description
The data in this table relates to primary care events which is any interaction between the patient and their registered general practice. All patients are identified by an unique patient key which can be linked with all other datasets available in the Discover-NOW catalogue to understand the patient pathway
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Monthly
Version
6.0.0
Modified

08/10/2024

Distribution release date

18/12/2019

Citation Requirements
NHS NWL ICS;,;Discover-NOW

Coverage

Start date

01/01/2015

Time lag
1-2 months
Geographic coverage
United Kingdom, England, London, Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Kensington and Chelsea, Westminster
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
READ, SNOMED CT
Format
Excel, SQL, Tableau, R

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
1-2 months
Access request cost
In Progress
Access method category
TRE/SDE
Access service description
Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven
Jurisdiction
GB
Data use limitation
No restriction
Data use requirements
Collaboration required,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Joint data controller model across North West London
Data Processor

North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)

Dataset Types: Health and disease


Collection Sources: Primary care - Clinic

Publications about this dataset

How an electronic health record became a real-world research resource: comparison between London's W...Bottle A, Cohen C, Lucas A, Saravanakumar K, Ul-Ha...

BMC medical informatics and decision making BMC medical informatics and decision making

Published - 2020