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North West London High Cost Drugs Data (NWL HCD)

Population Size

29,965

People

Years

2016

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

...see more

Lead time

1-2 months

Summary

The NWL HCD linked table are a number of high cost drugs that are excluded from the Payment by Results (PbR) tariff. They are typically specialist and are delivered to patients within NWL. The data includes details such as drug name, quantity and dosage.

Documentation

The purpose of the Drugs Patient Level Contract Monitoring (DrPLCM) is to enable the interchange, in a uniform format, of monthly patient level drug contract monitoring data between commissioners and providers of healthcare. This will ensure that contract monitoring and reporting is consistent and comparable across all commissioning organisations and their footprints.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
29965

Keywords

High Cost Drugs, HCD, Discover-NOW, Integrated Care, Pathway, Real World data, Linked longitudinal

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Population

29965

Count

08 Dec 2020

Persons

Registered population

45312

count

20 Oct 2022

Provenance

Source of data extraction
EPR
Collection source setting
Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Services, Community, Home, Prescribing - Community pharmacy, Other
Patient pathway description
This dataset contains information related to all patients prescribed high cost drugs in hospital. Every patient is identified by an unique patient key that can be used to link to other Discover-NOW datasets to derive the patient pathway.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Monthly
Version
6.0.0
Modified

08/10/2024

Distribution release date

18/12/2019

Citation Requirements
NHS NWL ICS;,;Discover-NOW

Coverage

Start date

01/01/2016

Time lag
1-2 months
Geographic coverage
United Kingdom, England, London, Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Kensington and Chelsea, Westminster
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
LOCAL
Format
Excel, SQL, Tableau, R

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
1-2 months
Access request cost
In Progress
Access method category
TRE/SDE
Access service description
Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.
Jurisdiction
GB
Data use limitation
No restriction
Data use requirements
Collaboration required,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Joint data controller model across North West London
Data Processor

North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)

Dataset Types: Health and disease


Collection Sources: Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Services, Community, Home, Prescribing - Community pharmacy, Other

Publications about this dataset

How an electronic health record became a real-world research resource: comparison between London's W...Bottle A, Cohen C, Lucas A, Saravanakumar K, Ul-Ha...

BMC medical informatics and decision making BMC medical informatics and decision making

Published - 2020