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North West London Integrated Care Record (NWL ICR)
Population Size
2,653,250
People
Years
2015
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
England
...see more
Lead time
1-2 months
Summary
The NWL ICR links all the tables held within DISCOVER-NOW via a de-identified patient key. This can be used for pathway analysis and population health analysis across care settings as Discover-NOW has data for primary, secondary and social care.
Documentation
This dataset is a merged dataset of the existing datasets already published. This dataset contains all the columns made available within the individual datasets but as one large amalgamated dataset. This provides a longitudinal linked dataset of NWL patients to support pathway analysis, population health analysis and research analytics that requires data from various care settings.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
2653250
Keywords
Primary Care Events, Dataset, Adult Social Care, High Cost Drugs, Primary Care Prescriptions, Mental Health, Community, Patient Level Data, Integrated Care Record, Outpatient Care, Accident and Emergency, Linked, Admitted Patient Care, Discover-NOW, Integrated Care, Pathway, Real World data, linked longitudinal, Other
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Population | 2653250 | Count | 08 Dec 2020 |
Events | Total events, all population | 685541152 | Count | 02 Nov 2022 |
Persons | All Registered population | 4321099 | count | 02 Nov 2022 |
Provenance
Purpose of dataset collection
Research cohort
Source of data extraction
EPR
Collection source setting
Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Services, Community, Home, Prescribing - Community pharmacy
Patient pathway description
This dataset is representative of the patient pathway as we have data from all care settings (primary care, acute, mental health, community and social care). We also have data for all disease areas and hence able to track the pathway for all diseases.
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Monthly
Version
5.0.0
Modified
08/10/2024
Distribution release date
30/01/2020
Citation Requirements
NHS NWL ICS;,;Discover-NOW
Coverage
Start date
31/03/2015
Time lag
1-2 months
Geographic coverage
United Kingdom, England, London, Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Westminster, Kensington and Chelsea
Maximum age range
150
Follow-up
10 Years
Accessibility
Language
en
Controlled vocabulary
LOCAL, OPCS4, READ, SNOMED CT, NHS NATIONAL CODES, ODS, ICD10
Format
Excel, SQL, Tableau, R
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
1-2 months
Access request cost
In Progress
Access method category
TRE/SDE
Access service description
Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.
Jurisdiction
GB
Data use limitation
No restriction
Data use requirements
Collaboration required,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Joint data controller model across North West London
Data Processor
North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)
Dataset Types: Health and disease
Collection Sources: Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Services, Community, Home, Prescribing - Community pharmacy
Publications about this dataset
How an electronic health record became a real-world research resource: comparison between London's W...Bottle A, Cohen C, Lucas A, Saravanakumar K, Ul-Ha...
BMC medical informatics and decision making BMC medical informatics and decision making
Published - 2020