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North West London Integrated Care Record (NWL ICR)

Population Size

2,653,250

People

Population Size statistic card

Years

2015

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

...see more

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

The NWL ICR links all the tables held within DISCOVER-NOW via a de-identified patient key. This can be used for pathway analysis and population health analysis across care settings as Discover-NOW has data for primary, secondary and social care.

Documentation

This dataset is a merged dataset of the existing datasets already published. This dataset contains all the columns made available within the individual datasets but as one large amalgamated dataset. This provides a longitudinal linked dataset of NWL patients to support pathway analysis, population health analysis and research analytics that requires data from various care settings.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

2653250

Associated media

https://discover-now.co.uk/the-data/https://www.nwlondonics.nhs.uk/professionals/whole-systems-integrated-care-wsic/information-de-identified-users

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Population

2653250

Count

08 Dec 2020

Events

Total events, all population

685541152

Count

02 Nov 2022

Persons

All Registered population

4321099

count

02 Nov 2022

Provenance

Purpose of dataset collection

Research cohort

Source of data extraction

EPR

Collection source setting

Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Services, Community, Home, Prescribing - Community pharmacy

Patient pathway description

This dataset is representative of the patient pathway as we have data from all care settings (primary care, acute, mental health, community and social care). We also have data for all disease areas and hence able to track the pathway for all diseases.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Monthly

Version

5.0.0

Modified

08/10/2024

Distribution release date

30/01/2020

Citation Requirements

NHS NWL ICS;,;Discover-NOW

Coverage

Start date

31/03/2015

Time lag

1-2 months

Geographic coverage

United Kingdom, England, London, Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Westminster, Kensington and Chelsea

Maximum age range

150

Follow-up

10 Years

Accessibility

Language

en

Controlled vocabulary

LOCAL, OPCS4, READ, SNOMED CT, NHS NATIONAL CODES, ODS, ICD10

Format

Excel, SQL, Tableau, R

Data Access Request

Dataset pipeline status

Not available

Access rights

https://discover-now.co.uk/make-an-enquiry/

Time to dataset access

1-2 months

Access request cost

In Progress

Access method category

TRE/SDE

Access service description

Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.

Jurisdiction

GB

Data use limitation

No restriction

Data use requirements

Collaboration required,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction

Data Controller

Joint data controller model across North West London

Data Processor

North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)

Dataset Types: Health and disease

Collection Sources: Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Services, Community, Home, Prescribing - Community pharmacy

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