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National Paediatric Diabetes Audit - Parent and Patient Experience measures
Population Size
Not reported
Years
2019 - 2019
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
England
Lead time
Variable
Summary
Patient and parent captured experience data on paediatric diabetes unit activity captured February to July 2019.
Documentation
Patient and parent captured experience data on paediatric diabetes unit activity captured February to July 2019 throughout England and Wales. The dataset includes questions about both the health checks received and diabetes outcomes achieved. No personal identifiable information is collected, but the identity of the unit where the patient was treated is included in the dataset.
Dataset type
Health and disease
Dataset sub-type
Metabolic and endocrine
Keywords
Audit, NPDA, Paediatric, Diabetes, PREM, Experience
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Events | Number of surveys returned | 14000 | Count | 31 Jul 2019 |
Provenance
Purpose of dataset collection
Audit
Source of data extraction
Electronic survey
Collection source setting
Clinic, Home
Patient pathway description
The dataset is representative of paediatric diabetes care, where participants were recruited from. Very few children or young people with diabetes would be managed outside of this setting.
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Static
Version
5.0.0
Modified
08/10/2024
Distribution release date
12/11/2020
Citation Requirements
Data has been provided by the Healthcare Quality Improvement Partnership from the National Paediatric Diabetes Audit Programme
Coverage
Start date
01/02/2019
End date
01/08/2019
Time lag
More than 6 months
Geographic coverage
United Kingdom, England, Wales
Minimum age range
4
Maximum age range
19
Follow-up
Unknown
Accessibility
Language
en
Controlled vocabulary
LOCAL
Format
CCSV, XLXS, STATA, SPSS
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
Variable
Access request cost
Access method category
Varies based on project
Jurisdiction
GB-EAW
Data use limitation
No restriction
Data use requirements
Project-specific restrictions
Data Controller
Healthcare Quality Improvement Partnership jointly with NHS England
Data Processor
Royal College of Paediarics and Child Health