Bookmarks

National Paediatric Diabetes Audit - Parent and Patient Experience measures

Population Size

Not reported
Population Size statistic card

Years

2019 - 2019

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Summary

Patient and parent captured experience data on paediatric diabetes unit activity captured February to July 2019.

Documentation

Patient and parent captured experience data on paediatric diabetes unit activity captured February to July 2019 throughout England and Wales. The dataset includes questions about both the health checks received and diabetes outcomes achieved. No personal identifiable information is collected, but the identity of the unit where the patient was treated is included in the dataset.

Dataset type

Health and disease

Dataset sub-type

Metabolic and endocrine

Associated media

https://www.hqip.org.uk/a-z-of-nca/national-paediatric-diabetes-audit/

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

Number of surveys returned

14000

Count

31 Jul 2019

Provenance

Purpose of dataset collection

Audit

Source of data extraction

Electronic survey

Collection source setting

Clinic, Home

Patient pathway description

The dataset is representative of paediatric diabetes care, where participants were recruited from. Very few children or young people with diabetes would be managed outside of this setting.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Static

Version

5.0.0

Modified

08/10/2024

Distribution release date

12/11/2020

Citation Requirements

Data has been provided by the Healthcare Quality Improvement Partnership from the National Paediatric Diabetes Audit Programme

Coverage

Start date

01/02/2019

End date

01/08/2019

Time lag

More than 6 months

Geographic coverage

United Kingdom, England, Wales

Minimum age range

4

Maximum age range

19

Follow-up

Unknown

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

CCSV, XLXS, STATA, SPSS

Data Access Request

Dataset pipeline status

Not available

Access rights

https://www.hqip.org.uk/national-programmes/accessing-ncapop-data, https://www.rcpch.ac.uk/resources/national-paediatric-diabetes-audit-transparency-open-data#downloadBox

Time to dataset access

Variable

Access request cost

https://www.hqip.org.uk/national-programmes/accessing-ncapop-data, https://www.rcpch.ac.uk/resources/national-paediatric-diabetes-audit-transparency-open-data#downloadBox

Access method category

Varies based on project

Jurisdiction

GB-EAW

Data use limitation

No restriction

Data use requirements

Project-specific restrictions

Data Controller

Healthcare Quality Improvement Partnership jointly with NHS England

Data Processor

Royal College of Paediarics and Child Health

Dataset Types: Health and disease

Dataset Sub-types: Metabolic and endocrine

Collection Sources: Clinic, Home

end of page