Bookmarks
Epilepsy 12 - clinical audit
Population Size
Years
2009
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
England
Lead time
Variable
Summary
Documentation
A prospective national clinical audit dataset which aims to include information on the investigation, diagnosis, treatment, care planning and outcomes of all children and young people with a new onset of epilepsy.
Details are recorded about the first assessment children and young people receive following a suspected seizure. Their care is then followed for 12 months. The audit uses 12 key measures drawn from clinical guidelines which include: involvement of paediatricians and nurses with experise in epilepsy, appropriate referrals to tertiary and surgical services,
content of the first assessment, appropriate seizure classification, appropriate diagnostic investigations, use of epilepsy medications, and evidence of comprehensive care planning.
Dataset type
Dataset sub-type
Keywords
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Events | Number of children registered to the audit for publication in 2020, or which 1118 had been diagnosed with epilepsy. | 3318 | Count | 01 Dec 2020 |
Provenance
Purpose of dataset collection
Collection source setting
Image contrast
Biological sample availability
Structural Metadata
Details
Publishing frequency
Version
Modified
08/10/2024
Citation Requirements
Coverage
Start date
01/01/2009
Time lag
Geographic coverage
Maximum age range
Follow-up
Accessibility
Language
Controlled vocabulary
Format
Data Access Request
Dataset pipeline status
Time to dataset access
Access request cost
An indicative cost will be provided to applicants upon application. Charges will be based on workload associated with the application and will be charged following sharing of the data. They will include a standard £350 + VAT admin fee to cover consultation and processing of the application
,plus a £350 + VAT per day of analyst time– chargeable in half day increments. These costs are limited to RCPCH activitiy in the administation and preparation of requested data. HQIP will also charge according to their costing model.
Access method category
Jurisdiction
Data use limitation
Data use requirements
Data Controller
Data Processor