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Epilepsy 12 - clinical audit

Population Size

Not reported

Years

2009

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

Variable

Summary

A prospective national clinical audit dataset which aims to include information on the investigation, diagnosis, treatment, care planning and outomes of all children and young people with a new onset of epilepsy

Documentation

A prospective national clinical audit dataset which aims to include information on the investigation, diagnosis, treatment, care planning and outcomes of all children and young people with a new onset of epilepsy.

Details are recorded about the first assessment children and young people receive following a suspected seizure. Their care is then followed for 12 months. The audit uses 12 key measures drawn from clinical guidelines which include: involvement of paediatricians and nurses with experise in epilepsy, appropriate referrals to tertiary and surgical services,
content of the first assessment, appropriate seizure classification, appropriate diagnostic investigations, use of epilepsy medications, and evidence of comprehensive care planning.

https://www.rcpch.ac.uk/sites/default/files/2019-06/epilepsy12_r3_patient_reg_and_clin_audit_dataset_june_19.pdf

Dataset type
Health and disease, Registry
Dataset sub-type
Neurological

Keywords

Audit, Epilepsy 12, Clinical, Paediatric, epilepsy, patient

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

Number of children registered to the audit for publication in 2020, or which 1118 had been diagnosed with epilepsy.

3318

Count

01 Dec 2020

Provenance

Purpose of dataset collection
Audit
Collection source setting
Secondary care - Outpatients, Community
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Daily
Version
5.0.0
Modified

08/10/2024

Citation Requirements
Data has been provided by the Healthcare Quality Improvement Partnership from the Epilepsy12 Audit Programme

Coverage

Start date

01/01/2009

Time lag
Variable
Geographic coverage
United Kingdom, England, Wales
Maximum age range
25
Follow-up
6 - 12 Months

Accessibility

Language
en
Controlled vocabulary
OTHER
Format
.xlsx

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Variable
Access request cost

An indicative cost will be provided to applicants upon application. Charges will be based on workload associated with the application and will be charged following sharing of the data. They will include a standard £350 + VAT admin fee to cover consultation and processing of the application

,

plus a £350 + VAT per day of analyst time– chargeable in half day increments. These costs are limited to RCPCH activitiy in the administation and preparation of requested data. HQIP will also charge according to their costing model.

Access method category
Varies based on project
Jurisdiction
GB-EAW
Data use limitation
No restriction
Data use requirements
Project-specific restrictions,Time limit on use
Data Controller
Healthcare Quality Improvement Partnership jointly with NHS England
Data Processor
Royal College of Paediatrics and Child Health

Dataset Types: Health and disease, Registry

Dataset Sub-types: Neurological


Collection Sources: Secondary care - Outpatients, Community