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Epilepsy 12 - National organisational audit and Trust profile

Population Size

Not reported
Population Size statistic card

Years

1970

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

A dataset comprising a yearly survey of Trusts' paediatric epilepsy services

Documentation

A dataset comprising a yearly survey of Trusts' paediatric epilepsy services. The dataset covers England and Wales and includes information on 10 areas of the provision and organisation of services: Workforce, Epilepsy clinic configuration, Tertiary provision, Investigations, Service contact, Young people and transition, Mental health provision, Neurodevelopmental support, Care planning, and the use of a Patient database/register.

https://www.rcpch.ac.uk/sites/default/files/2018-07/epilepsy12_organisational_audit_dataset_may_2018_0.pdf

Dataset type

Health and disease

Associated media

https://www.hqip.org.uk/a-z-of-nca/national-epilepsy-12-audit/#.YKKX0qhKiUk

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

Number of Trusts and Health Boards who submitted data for the 2020 report.

136

Count

01 Dec 2020

Provenance

Purpose of dataset collection

Audit

Source of data extraction

Electronic survey

Collection source setting

Secondary care - Outpatients, Community

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Other

Version

5.0.0

Modified

08/10/2024

Citation Requirements

Data has been provided by the Healthcare Quality Improvement Partnership from the Epilepsy12 Audit Programme

Coverage

Start date

01/01/1970

Time lag

Variable

Geographic coverage

United Kingdom, England, Wales

Maximum age range

25

Accessibility

Language

en

Controlled vocabulary

OTHER

Format

.xlsx

Data Access Request

Dataset pipeline status

Not available

Access rights

https://www.hqip.org.uk/national-programmes/accessing-ncapop-data

Time to dataset access

2-6 months

Access request cost

An indicative cost will be provided to applicants upon application. Charges will be based on workload associated with the application and will be charged following sharing of the data. They will include a standard £350 + VAT admin fee to cover consultation and processing of the application

,

plus a £350 + VAT per day of analyst time– chargeable in half day increments. These costs are limited to RCPCH activitiy in the administation and preparation of requested data. HQIP will also charge according to their costing model.

Access method category

Varies based on project

Jurisdiction

GB-EAW

Data use limitation

No restriction

Data use requirements

Project-specific restrictions,Time limit on use

Data Controller

Healthcare Quality Improvement Partnership jointly with NHS England

Data Processor

Royal College of Paediatrics and Child Health

Dataset Types: Health and disease

Dataset Sub-types: Neurological

Collection Sources: Secondary care - Outpatients, Community