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Epilepsy 12 - National organisational audit and Trust profile

Population Size

Not reported

Years

1970

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

2-6 months

Summary

A dataset comprising a yearly survey of Trusts' paediatric epilepsy services

Documentation

A dataset comprising a yearly survey of Trusts' paediatric epilepsy services. The dataset covers England and Wales and includes information on 10 areas of the provision and organisation of services: Workforce, Epilepsy clinic configuration, Tertiary provision, Investigations, Service contact, Young people and transition, Mental health provision, Neurodevelopmental support, Care planning, and the use of a Patient database/register.

https://www.rcpch.ac.uk/sites/default/files/2018-07/epilepsy12_organisational_audit_dataset_may_2018_0.pdf

Dataset type
Health and disease
Dataset sub-type
Neurological

Keywords

Audit, Epilepsy 12, National organisational, Paediatric, Survey, workforce, epilepsy

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

Number of Trusts and Health Boards who submitted data for the 2020 report.

136

Count

01 Dec 2020

Provenance

Purpose of dataset collection
Audit
Source of data extraction
Electronic survey
Collection source setting
Secondary care - Outpatients, Community
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Other
Version
5.0.0
Modified

08/10/2024

Citation Requirements
Data has been provided by the Healthcare Quality Improvement Partnership from the Epilepsy12 Audit Programme

Coverage

Start date

01/01/1970

Time lag
Variable
Geographic coverage
United Kingdom, England, Wales
Maximum age range
25

Accessibility

Language
en
Controlled vocabulary
OTHER
Format
.xlsx

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
2-6 months
Access request cost

An indicative cost will be provided to applicants upon application. Charges will be based on workload associated with the application and will be charged following sharing of the data. They will include a standard £350 + VAT admin fee to cover consultation and processing of the application

,

plus a £350 + VAT per day of analyst time– chargeable in half day increments. These costs are limited to RCPCH activitiy in the administation and preparation of requested data. HQIP will also charge according to their costing model.

Access method category
Varies based on project
Jurisdiction
GB-EAW
Data use limitation
No restriction
Data use requirements
Project-specific restrictions,Time limit on use
Data Controller
Healthcare Quality Improvement Partnership jointly with NHS England
Data Processor
Royal College of Paediatrics and Child Health

Dataset Types: Health and disease

Dataset Sub-types: Neurological


Collection Sources: Secondary care - Outpatients, Community