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Quality of Life of Cancer Survivors: Pilot Patient Reported Outcomes (GOLD)

Population Size

901,965

People

Population Size statistic card

Years

2006 - 2010

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Summary

CPRD GOLD linked Quality of Life of Cancer Survivors pilot survey (QOLP) data from survivors of breast, colorectal, prostate cancer or non-Hodgkin’s lymphoma, diagnosed 2006-2010. Note, these data are not routinely available.

Documentation

CPRD GOLD linked Quality of Life of Cancer Survivors in England: Pilot Survey (2011) was commissioned by the Department of Health as part of the National Cancer Survivorship Initiative (NCSI). The survey was conducted by Quality Health in conjunction with three cancer registries in England. The survey measured the overall quality of life of representative samples of cancer survivors with breast, colorectal cancer, prostate cancer and non-Hodgkin’s lymphoma (NHL) diagnosed during July 2006 - July 2010. Quality of life was assessed at four different time points after diagnosis at approximately one, two, three or five years. As this was a pilot survey, numbers are small and data governance issues will need to be carefully considered on a study by study basis. Outcome items in the survey are made up of Euroqol 5-level (EQ-5D), Functional Assessment of Cancer Therapy (FACT), and Social Difficulties Inventory (SDI) items.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

901965

Associated media

https://www.cprd.com/linked-data

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Number of CPRD GOLD patients matched to a single cancer identifier

901965

Count

06 Sep 2021

Provenance

Source of data extraction

Electronic survey

Collection source setting

Secondary care - In-patients, Other

Patient pathway description

Cancer registration data are collected from a range of health care provider systems and other services.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Quarterly

Version

7.0.0

Modified

08/10/2024

Distribution release date

11/12/2020

Citation Requirements

Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)

Coverage

Start date

07/01/2006

End date

31/07/2010

Time lag

More than 6 months

Geographic coverage

United Kingdom, England

Maximum age range

115

Follow-up

Other

Accessibility

Language

en

Controlled vocabulary

OTHER

Format

Tab delimited text

Data Access Request

Dataset pipeline status

Not available

Access rights

HTTPS://CPRD.COM/DATA-ACCESS

Time to dataset access

Variable

Access request cost

https://www.cprd.com/pricing

Access method category

Varies based on project

Access service description

Access to CPRD data, including UK Primary Care Data, and linked data such as Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research Data Governance (RDG) Process. Independent scientific and patient advice is provided by Expert Review Committees (ERCs) and the Central Advisory Committee (CAC): https://www.cprd.com/research-applications

Jurisdiction

GB-ENG

Data use limitation

General research use,No linkage,Research-specific restrictions,Research use only

Data use requirements

Geographical restrictions,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction

Data Controller

Clinical Practice Research Datalink (CPRD)

Data Processor

CPRD

Dataset Types: Health and disease

Collection Sources: Secondary care - In-patients, Other

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