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HES Patient Reported Outcomes Measures (PROMs) data for CPRD GOLD

Population Size

8,024,752

People

Years

2009

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

Variable

Summary

CPRD GOLD linked HES Patient Reported Outcomes Measures (PROMs) data on quality of life before and after common NHS elective surgical procedures. Note, these data are no longer routinely available; contact enquiries@cprd.com to discuss.

Documentation

CPRD GOLD linked Hospital Episode Statistics Patient Reported Outcomes Measures (PROMs) data covers common elective surgical procedures performed in NHS England including groin hernia operations, hip replacements, knee replacements and varicose vein operations. The programme covers over 300 NHS hospitals and Independent Sector Providers in England that undertake elective operations. The purpose of PROMs is to capture patients’ own assessments of their health and health-related quality of life, shortly before and some months after surgery. Patient questionnaires administered comprise a disease-specific instrument, a generic instrument and a series of additional questions about the patient’s health and symptoms. Note, mandatory varicose vein surgery and groin-hernia surgery national PROMs collections ended on 1 October 2017.

Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
8024752

Keywords

Reported, PROMS, Outcome, Patient, Measures

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Number of CPRD GOLD patients matched to single HES identifier

8024752

Count

06 Sep 2021

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Secondary care - In-patients
Patient pathway description
Secondary care
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Quarterly
Version
5.0.0
Modified

08/10/2024

Distribution release date

21/04/2020

Citation Requirements
NHS Digital

Coverage

Start date

04/01/2009

Time lag
More than 6 months
Geographic coverage
United Kingdom, England
Maximum age range
115
Follow-up
1 - 10 Years

Accessibility

Language
en
Controlled vocabulary
OTHER
Format
Tab delimited text

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Variable
Access request cost
Access method category
Varies based on project
Access service description
Access to CPRD data, including UK Primary Care Data, and linked data such as Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research Data Governance (RDG) Process. Independent scientific and patient advice is provided by Expert Review Committees (ERCs) and the Central Advisory Committee (CAC): https://www.cprd.com/research-applications
Jurisdiction
GB-ENG
Data use limitation
General research use,No linkage,Research-specific restrictions,Research use only
Data use requirements
Geographical restrictions,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Clinical Practice Research Datalink (CPRD)
Data Processor
CPRD

Dataset Types: Health and disease


Collection Sources: Secondary care - In-patients