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Quality of Life of Colorectal Cancer Survivors: Patient Reported Outcomes (GOLD)

Population Size

901,965

People

Population Size statistic card

Years

2010 - 2011

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Summary

CPRD GOLD linked Quality of Life of Colorectal Cancer Survivors survey (QOLC) data from survivors of colorectal cancer diagnosed 2010-2011. Note, these data are no longer routinely available; contact enquiries@cprd.com to discuss.

Documentation

CPRD GOLD linked Quality of Life of Colorectal Cancer Survivors in England: Patient Reported Outcome Measures (PROMs) survey, is a national survey that was commissioned by the Department of Health as a follow-on from the pilot study in July 2011 undertaken to confirm the value of collecting PROMs data on breast, prostate, colorectal and non-Hodgkin’s lymphoma. It includes survey data from 34,467 patients aged 16 years and over with an incident colorectal cancer diagnosis during Jan 2010 Dec 2011. Outcome items in the survey are made up of Euroqol 5-level (EQ-5D), Functional Assessment of Cancer Therapy (FACT), and Social Difficulties Inventory (SDI) items.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

901965

Associated media

https://www.cprd.com/linked-data

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Number of CPRD GOLD patients matched to a single cancer identifier

901965

Count

06 Sep 2021

Provenance

Source of data extraction

Electronic survey

Collection source setting

Secondary care - In-patients, Other

Patient pathway description

Cancer registration data are collected from a range of health care provider systems and other services.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Quarterly

Version

7.0.0

Modified

08/10/2024

Distribution release date

11/12/2020

Citation Requirements

Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)

Coverage

Start date

01/01/2010

End date

31/12/2011

Time lag

More than 6 months

Geographic coverage

United Kingdom, England

Maximum age range

115

Follow-up

Other

Accessibility

Language

en

Controlled vocabulary

OTHER

Format

Tab delimited text

Data Access Request

Dataset pipeline status

Not available

Access rights

HTTPS://CPRD.COM/DATA-ACCESS

Time to dataset access

Variable

Access request cost

https://www.cprd.com/pricing

Access method category

Varies based on project

Access service description

Access to CPRD data, including UK Primary Care Data, and linked data such as Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research Data Governance (RDG) Process. Independent scientific and patient advice is provided by Expert Review Committees (ERCs) and the Central Advisory Committee (CAC): https://www.cprd.com/research-applications

Jurisdiction

GB-ENG

Data use limitation

General research use,No linkage,Research-specific restrictions,Research use only

Data use requirements

Geographical restrictions,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction

Data Controller

Clinical Practice Research Datalink (CPRD)

Data Processor

CPRD

Dataset Types: Health and disease

Collection Sources: Secondary care - In-patients, Other

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