Bookmarks
Quality of Life of Colorectal Cancer Survivors: Patient Reported Outcomes (GOLD)
Population Size
901,965
People
Years
2010 - 2011
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
England
Lead time
Variable
Summary
CPRD GOLD linked Quality of Life of Colorectal Cancer Survivors survey (QOLC) data from survivors of colorectal cancer diagnosed 2010-2011. Note, these data are no longer routinely available; contact enquiries@cprd.com to discuss.
Documentation
CPRD GOLD linked Quality of Life of Colorectal Cancer Survivors in England: Patient Reported Outcome Measures (PROMs) survey, is a national survey that was commissioned by the Department of Health as a follow-on from the pilot study in July 2011 undertaken to confirm the value of collecting PROMs data on breast, prostate, colorectal and non-Hodgkin’s lymphoma. It includes survey data from 34,467 patients aged 16 years and over with an incident colorectal cancer diagnosis during Jan 2010 Dec 2011. Outcome items in the survey are made up of Euroqol 5-level (EQ-5D), Functional Assessment of Cancer Therapy (FACT), and Social Difficulties Inventory (SDI) items.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
901965
Associated media
Keywords
Cancer Survivor, Quality of Life
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Number of CPRD GOLD patients matched to a single cancer identifier | 901965 | Count | 06 Sep 2021 |
Provenance
Source of data extraction
Electronic survey
Collection source setting
Secondary care - In-patients, Other
Patient pathway description
Cancer registration data are collected from a range of health care provider systems and other services.
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Quarterly
Version
7.0.0
Modified
08/10/2024
Distribution release date
11/12/2020
Citation Requirements
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)
Coverage
Start date
01/01/2010
End date
31/12/2011
Time lag
More than 6 months
Geographic coverage
United Kingdom, England
Maximum age range
115
Follow-up
Other
Accessibility
Language
en
Controlled vocabulary
OTHER
Format
Tab delimited text
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
Variable
Access request cost
Access method category
Varies based on project
Access service description
Access to CPRD data, including UK Primary Care Data, and linked data such as Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research Data Governance (RDG) Process. Independent scientific and patient advice is provided by Expert Review Committees (ERCs) and the Central Advisory Committee (CAC): https://www.cprd.com/research-applications
Jurisdiction
GB-ENG
Data use limitation
General research use,No linkage,Research-specific restrictions,Research use only
Data use requirements
Geographical restrictions,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Clinical Practice Research Datalink (CPRD)
Data Processor
CPRD