HDR UK Gateway
HDR Gateway logo

Bookmarks

Studies Supported by NIHR CRN, ICD10 Coded, with Summary Site Recruitment Data

Population Size

Not reported
Population Size statistic card

Years

2008

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Geographic coverage statistic card

Lead time

1-2 weeks

Lead time statistic card

Summary

All non-commercial studies supported by NIHR CRN to date with HRCS and ICD10 codings where present. For each study, there is a list of all NHS Trusts and GP Practices which have recruited participants for studies and the total number of participants/month.

Documentation

This dataset comprises summary records of all non-commercial clinical research projects which have been supported by the National Institute for Research Clinical Research Network [CRN]. The majority of these studies have been coded according to the disease(s) or condition(s) they are investigating. This classification has been done by a clinical coder using ICD10 and HRCS* codes.

Accompanying this information is a list of all the NHS Trusts and GP Practices which have recruited participants for these studies with the number of participants recruited each month. The Trusts and GP Practices are identified by name and ODS Code.

Studies receive CRN support through a formal process based on criteria set by DHSC (https://www.nihr.ac.uk/documents/eligibility-for-nihr-clinical-research-network-support/23746). For the purposes of this extract it includes all studies added to the NHR CRN Portfolio since 1st January 2008. *UKCRC Health Research Classification System Health Categories.

Dataset type

Health and disease

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

The data set is concerned with the number of consents to join clinical research which have been taken. Hence the observed node in this case is the consent event. Measured values will increase over time from the baseline recorded here by c. 60k/month

7883974

Count

04 May 2021

Provenance

Purpose of dataset collection

Administrative

Source of data extraction

Other

Collection source setting

Other

Patient pathway description

This dataset is not representative of the patient pathway

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Irregular

Version

1.0.0

Modified

08/10/2024

Citation Requirements

National Institute for Health Research Research Clinical Research Network

Coverage

Start date

01/01/2008

Time lag

Less than 1 week

Geographic coverage

United Kingdom

Maximum age range

150

Follow-up

Other

Accessibility

Language

en

Controlled vocabulary

ODS, ICD10, LOCAL, OTHER

Format

Comma Separated Values

Data Access Request

Dataset pipeline status

Not available

Access rights

https://sites.google.com/nihr.ac.uk/nihrcrndatasharing/home

Time to dataset access

1-2 weeks

Access request cost

None

Access method category

Varies based on project

Access service description

At present, there is no data access environment, but there is a process for requesting a copy of the dataset. Please use this link: https://sites.google.com/nihr.ac.uk/nihrcrndatasharing/home to complete a data access request.

On approval of an application for access a file containing the data will be sent by email to the applicant.

Jurisdiction

GB-GB

Data use limitation

General research use

Data use requirements

User-specific restriction,Publication required

Data Controller

The Department of Health and Social Care

Data Processor

National Institute for Health Research Research Clinical Research Network

Dataset Types: Health and disease

Collection Sources: Other