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UK Renal Registry - AKI Lab Alerts Dataset
Population Size
3,600,000
People
Years
2015
Associated BioSamples
None/not available
Geographic coverage
England
Lead time
2-6 months
Summary
Patient-level data for adults and children who trigger an electronic alert for an acute kidney injury (AKI) in primary or secondary care in England.
Documentation
The dataset contains patient-level data for adults and children who trigger a laboratory e-alert for an acute kidney injury (AKI) in primary or secondary care in England. The data are collected monthly and include patient identifiable information, and limited socio-demographic and clinical data. Data collection began in 2015 and by 2022, 98% of the 192 laboratories in England submitted data that could be used in the UKRR’s annual AKI report that was published in Dec 2023. Each year the UKRR collects data on about 500,000 people with a suspected AKI in England - this includes more than 1.5 million AKI e-alerts. This data collection is mandated by NHS England and alerts are generated by an algorithm embedded in the laboratory information management systems. See here for further information: https://ukkidney.org/audit-research/data-permissions/data/ukrr-lab-aki-dataset
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
3600000
Keywords
UKRR, AKI, Renal, Kidney, Laboratory e-alerts, Acute kidney injury, Kidney disease, e-alerts
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Since 2015 c. 3.6 million people have triggered a laboratory e-alert for an AKI. Each year the UKRR collects data on about 500,000 people with a suspected AKI in England - this includes more than 1.5 million AKI e-alerts. | 3600000 | Count | 30 Jun 2024 |
Provenance
Purpose of dataset collection
Audit, Disease registry, Care
Source of data extraction
LIMS
Collection source setting
Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Clinic, Secondary care - Accident and Emergency, Community
Patient pathway description
Patients may only experience an acute kidney injury (AKI) once in their life, or they may have multiple episodes. The AKI lab dataset captures AKI e-alerts for all children and adults who trigger an AKI alert in both primary and secondary care in England. Data collection is mandated by NHS England and in 2023 98% of laboratories submitted data.
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Quarterly
Version
1.0.0
Modified
08/10/2024
Distribution release date
01/09/2024
Citation Requirements
UK Renal Registry, UK Kidney Association
Coverage
Start date
30/03/2015
Time lag
2-6 months
Geographic coverage
England
Maximum age range
150
Follow-up
0 - 6 Months
Accessibility
Language
en
Controlled vocabulary
LOCAL
Format
csv or xlsx or sas7bdat
Data Access Request
Dataset pipeline status
Available
Time to dataset access
2-6 months
Access request cost
Charges may apply for new aggregate data and extracts of pseudonymous patient level data. The charges are to recover the costs of managing the application process and preparing extracts of data. The costs depend on the level of service required from the UKRR and whether this is limited to a simple extract of data, or requires additional input such as methodological or statistical support. The UKRR can advise on costs once the expression of interest is received and applicants may also be requested to complete a costing form.
Access method category
Direct access
Access service description
Data are released to researchers who have successfully gone through the UKRR's data application process. Prior to any data sharing with successful applicants, a fixed term data sharing agreement (DSA) is drawn up between the UK Kidney Association and the recipient. This specifies the scope of the analyses permitted, the data items to be shared, the frequency of the data sharing, the names of the researchers and the time limit beyond which data must be destroyed.
Jurisdiction
GB-GB
Data use limitation
General research use
Data use requirements
Project-specific restrictions,Ethics approval required,Geographical restrictions,Time limit on use,Not for profit use,User-specific restriction,Institution-specific restrictions
Data Controller
UK Kidney Association
Investigations