Bookmarks

UK Renal Registry - AKI Lab Alerts Dataset

Population Size

3,600,000

People

Population Size statistic card

Years

2015

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

England

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

Patient-level data for adults and children who trigger an electronic alert for an acute kidney injury (AKI) in primary or secondary care in England.

Documentation

The dataset contains patient-level data for adults and children who trigger a laboratory e-alert for an acute kidney injury (AKI) in primary or secondary care in England. The data are collected monthly and include patient identifiable information, and limited socio-demographic and clinical data. Data collection began in 2015 and by 2022, 98% of the 192 laboratories in England submitted data that could be used in the UKRR’s annual AKI report that was published in Dec 2023. Each year the UKRR collects data on about 500,000 people with a suspected AKI in England - this includes more than 1.5 million AKI e-alerts. This data collection is mandated by NHS England and alerts are generated by an algorithm embedded in the laboratory information management systems. See here for further information: https://ukkidney.org/audit-research/data-permissions/data/ukrr-lab-aki-dataset

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

3600000

Associated media

https://ukkidney.org/audit-research/data-permissions/data/ukrr-lab-aki-dataset

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Since 2015 c. 3.6 million people have triggered a laboratory e-alert for an AKI. Each year the UKRR collects data on about 500,000 people with a suspected AKI in England - this includes more than 1.5 million AKI e-alerts.

3600000

Count

30 Jun 2024

Provenance

Purpose of dataset collection

Audit, Disease registry, Care

Source of data extraction

LIMS

Collection source setting

Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Clinic, Secondary care - Accident and Emergency, Community

Patient pathway description

Patients may only experience an acute kidney injury (AKI) once in their life, or they may have multiple episodes. The AKI lab dataset captures AKI e-alerts for all children and adults who trigger an AKI alert in both primary and secondary care in England. Data collection is mandated by NHS England and in 2023 98% of laboratories submitted data.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Quarterly

Version

1.0.0

Modified

08/10/2024

Distribution release date

01/09/2024

Citation Requirements

UK Renal Registry, UK Kidney Association

Coverage

Start date

30/03/2015

Time lag

2-6 months

Geographic coverage

England

Maximum age range

150

Follow-up

0 - 6 Months

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

csv or xlsx or sas7bdat

Data Access Request

Dataset pipeline status

Available

Access rights

https://renal.org/audit-research/how-access-data/ukrr-data/apply-access-ukrr-data

Time to dataset access

2-6 months

Access request cost

Charges may apply for new aggregate data and extracts of pseudonymous patient level data. The charges are to recover the costs of managing the application process and preparing extracts of data. The costs depend on the level of service required from the UKRR and whether this is limited to a simple extract of data, or requires additional input such as methodological or statistical support. The UKRR can advise on costs once the expression of interest is received and applicants may also be requested to complete a costing form.

Access method category

Direct access

Access service description

Data are released to researchers who have successfully gone through the UKRR's data application process. Prior to any data sharing with successful applicants, a fixed term data sharing agreement (DSA) is drawn up between the UK Kidney Association and the recipient. This specifies the scope of the analyses permitted, the data items to be shared, the frequency of the data sharing, the names of the researchers and the time limit beyond which data must be destroyed.

Jurisdiction

GB-GB

Data use limitation

General research use

Data use requirements

Project-specific restrictions,Ethics approval required,Geographical restrictions,Time limit on use,Not for profit use,User-specific restriction,Institution-specific restrictions

Data Controller

UK Kidney Association

Investigations

https://ukkidney.org/audit-research/projects/ukrr

Enrichment and Linkage

Investigations

https://ukkidney.org/audit-research/projects/ukrr

Dataset Types: Health and disease

Collection Sources: Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Clinic, Secondary care - Accident and Emergency, Community

end of page