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Scottish Cancer Registry (SMR06)

Population Size

Not reported
Population Size statistic card

Years

1981

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Scotland

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Summary

Public Health Scotland is responsible for the collection of information on Scottish residents when they are diagnosed with malignant (and some benign) tumours.

Documentation

The registry began in 1958 collecting personal, demographic and diagnosis information (such as site, histology, behaviour, histological confirmation and hospital of diagnosis) from cancer patients. In 1997, a new electronic cancer recording system was launched and at this point the registry was extended to include extra information on tumour stage (for breast, cervical and colorectal cancer), tumour grade and treatment information. A wide variety of geographical data is also included in the dataset including Scottish Index of Multiple Deprivation and Carstairs measures, census output area, NHS Board, Electoral Ward and Parliamentary constituency.

Dataset type

Health and disease

Associated media

https://www.researchdata.scot/media/gz1lpmk2/scottish-cancer-registry-smr06-variables.pdf

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

Episodes

1090594

count

16 Jan 2021

Provenance

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Annual

Version

10.0.0

Modified

08/10/2024

Distribution release date

31/08/2020

Citation Requirements

Public Health Scotland

Coverage

Start date

01/01/1981

Time lag

More than 6 months

Geographic coverage

United Kingdom, Scotland

Maximum age range

150

Accessibility

Language

en

Alignment with standardised data models

OMOP

Controlled vocabulary

NHS SCOTLAND NATIONAL CODES

Format

text/csv

Data Access Request

Dataset pipeline status

Available

Access rights

https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/services-we-offer/

Time to dataset access

Variable

Access request cost

https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/cost-of-services/

Access method category

TRE/SDE

Access service description

Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/

Jurisdiction

GB-GBN

Data use limitation

General research use

Data Controller

Public Health Scotland

Data Processor

National Services Scotland

Dataset Types: Health and disease

Collection Sources: