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Aberdeen Maternity and Neonatal Databank (AMND)
Population Size
193,886
People
Years
1948 - 2017
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Scotland
...see more
Lead time
Not applicable
Summary
Documentation
The Aberdeen Maternity and Neonatal Databank (AMND) was initiated in the department of Obstetrics and Gynaecology, University of Aberdeen, in 1950, by the late Professor Sir Dugald Baird, in collaboration with the Medical Research Council’s (MRC’s) Medical Sociology Unit. It was originally set up as a resource for the study of the physiology, pathology and sociology of pregnancy, but the usefulness of the AMND has extended significantly beyond this through linkage with other health and social care records as well as intergenerational and family linkages.
The AMND is an invaluable resource for life-course epidemiology, especially since it is one of the earliest and most comprehensive obstetric databases. From the year 1950 to the present, this unique database has been recording all the obstetric and fertility-related events occurring in women residing in Aberdeen, Scotland, UK.
Data are collected from every pregnancy event occurring in Aberdeen Maternity Hospital which is part of the National Health Services (NHS) Grampian.
Aberdeen Maternity Hospital is the only maternity hospital in the city of Aberdeen and serves the Grampian region as well as the Northern Isles, Shetland and Orkney, for tertiary maternity care. A dedicated midwives’ unit also based at the hospital provides shared maternity care for uncomplicated pregnancies. The hospital provides antenatal and postnatal care, with about 4000–5000 babies born every year. In addition, an early pregnancy unit based at the hospital manages complications such as miscarriage and other pregnancy loss. The AMND also captures data from these units.
The AMND population coverage varies according to different areas. It covers about 99% of Aberdeen and about 97% of the entire Grampian region. This differential coverage is due to a small proportion of home births and deliveries in peripheral hospitals.
This description references the International Journal of Epidemiology, Volume 45, Issue 2, April 2016, Pages 389–394, https://doi.org/10.1093/ije/dyv356
Dataset type
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Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Total number of women by count of unique patient ID | 193886 | Count | 14 Feb 2022 |
Events | Total number of pregnancies by count of pregnancy records | 293898 | Count | 14 Feb 2022 |
Events | Total number of deliveries by count of delivery records | 291927 | Count | 14 Feb 2022 |
Persons | Total number of babies by count of baby records | 297098 | Count | 14 Feb 2022 |
Persons | Total number of twins by count of baby records with two births | 7643 | Count | 14 Feb 2022 |
Provenance
Purpose of dataset collection
Source of data extraction
Collection source setting
Patient pathway description
The dataset contains information relating to pregnancies and deliveries. The main data items include the following information:
- Patient.
- Pregnancy (from first ante-natal booking).
- Summary of labour and delivery.
- Baby details
delivery and outcome.
Other data items include:
- Diagnostic procedures
- Operative management
- Drugs
- Indications for procedures
- Intergenerational data
- Datasets from previous studies
- Neonatal data
Information is recorded for both Primary and Secondary care (from initial scans through to delivery).
The full patient pathway is recorded from family details (patient
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Biological sample availability
Structural Metadata
Details
Publishing frequency
Version
Modified
08/10/2024
Citation Requirements
Coverage
Start date
24/09/1948
End date
01/10/2017
Time lag
Geographic coverage
Minimum age range
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Accessibility
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Format
Data Access Request
Dataset pipeline status
Access rights
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Access method category
Access service description
The Grampian Data Safe Haven
The Grampian Data Safe Haven (DaSH) is a secure, virtual healthcare data analysis and storage centre established by the University of Aberdeen and NHS Grampian to allow for the secure processing and linking of health data for the Grampian and Scottish population when it is not practicable to obtain consent from individual patients.
The DaSH Research Coordinators can provide advice and support with obtaining the required approvals for DaSH projects. A Permissions Pathway guide explaining the approvals process for DaSH projects is also available. In addition, DaSH have some template application forms with pre-populated information about DaSH that can be used by researchers during the permission application process as appropriate.
DaSH technology ensures unconsented healthcare, social data and other types of sensitive data are accessible for research and clinical purposes whilst protecting individuals’ privacy. Our ethos is built on working with clinicians, researchers and industry partners to improve health and social care by providing a safe and secure environment and enabling cutting-edge research.
The Grampian Data Safe Haven offers bespoke data storage, processing and linkage services based on the individual needs of your research project. The DaSH team works with researchers to provide detailed project planning and data management support whilst ensuring adherence to the highest standards of security and governance and protecting patient confidentiality.
Each project is supported by a Research Coordinator and Data Analyst to ensure projects adhere to permissions and outputs meet the project specification and comply with information security regulations. If you require non-DaSH held datasets, we can assist with obtaining the relevant approvals, as well as coordinating the request with the data custodians and linkage between datasets.
Jurisdiction
Data use limitation
Data use requirements
Data Controller
The AMND Steering Committee is responsible for the future preservation of the access to the Aberdeen Maternity and Neonatal Databank with data from 1949 onwards.
The MRC Medical Sociology Unit collaborated in and has a responsibility for the Databank up to and including data for 1983 only.
The organisations involved in the preparation
processing and access of the data are represented on the Committee as follows:
Department of Obstetrics and Gynaecology
University of Aberdeen. Grampian University Hospitals Trust
,Obstetric and Gynaecology Staff Committee. Department of Child Health. MRC Medical Sociology Unit
,Glasgow. A.U. Computing Centre.
Data Processor