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Eye images and retinopathy grades in diabetic eye screening

Population Size

Not reported
Population Size statistic card

Years

2020 - 2021

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

The dataset is a longitudinal dataset consisting of eye images and retinopathy grades from those who are screened for diabetic retinopathy in the Birmingham, Solihull and Black Country DR screening program.

Documentation

Background Diabetes mellitus affects over 3.9 million people in the United Kingdom (UK), with over 2.6 million people in England alone. Diabetic retinopathy (DR) is a common microvascular complication of type 1 and type 2 diabetes and remains a major cause of vision loss and blindness in those of working age. The National Institute for Health and Care Excellence recommendations are for annual screening using digital retinal photography for all patients with diabetes aged 12 years and over until such time as specialist surveillance or referral to Hospital Eye Services (HES) is required.

Birmingham, Solihull and Black Country DR screening program is a member of the National Health Service (NHS) Diabetic Eye Screening Programme. This dataset contains routine community annual longitudinal screening patient results of over 200000 patients with screening results per patient ranging from 1 year to 15 years. Key data included in this imaging dataset are: • Fundal photographs • The national screening diabetic grade category (seven categories from R0M0 to R3M1) • Screening Outcome (digital surveillance and time; referral to HES)

Geography Birmingham, Solihull and Black Country is set within the West Midlands and has a population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.

Data source: The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200,000 patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic screening scheme in Europe.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

Over 200,000 patients 2.5 million grading events at any level 1.68 million gradings including ophthalmology referrals 1 million final grades from community screens 0ver 6 million images over 15 years

200000

Count

01 Oct 2021

Provenance

Purpose of dataset collection

Care

Source of data extraction

EPR

Collection source setting

Clinic, Secondary care - In-patients, Secondary care - Outpatients

Patient pathway description

The Birmingham, Solihull and Black Country dataset is representative of the patient pathway for community screening and grading of diabetic eye disease. It covers standard UK Public Health England Diabetic Eye Screening requirements and will include patients receiving screening through the standard model, routine diabetic screening, surveillance and slit lamp examination.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Annual

Version

1.0.0

Modified

08/10/2024

Distribution release date

01/10/2021

Citation Requirements

University Hospitals Birmingham NHS Foundation Trust

Coverage

Start date

30/11/2020

End date

31/03/2021

Time lag

2-4 weeks

Geographic coverage

United Kingdom, England, West Midlands

Minimum age range

12

Maximum age range

110

Follow-up

10 Years

Accessibility

Language

en

Controlled vocabulary

NHS NATIONAL CODES

Format

SQL, CSV, Images

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

2-6 months

Access method category

TRE/SDE

Access service description

INSIGHT adheres to HDRUK data access principles including the five SAFES; anonymised data is provided into an agreed Trusted Research Environment such as the PIONEER Microsoft Azure TRE at University Hospitals Birmingham NHSFT or equivalent external safe environment, under data license.

Jurisdiction

GB-ENG, GB-GB

Data use limitation

Research-specific restrictions

Data use requirements

Project-specific restrictions

Data Controller

University Hospitals Birmingham NHS Foundation Trust

Dataset Types: Health and disease


Collection Sources: Clinic, Secondary care - In-patients, Secondary care - Outpatients

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