Bookmarks
A NIHR Birmingham BRC dataset of community acquired pneumonia (CAP) and frailty
Population Size
2,158
People
Years
2019 - 2022
Associated BioSamples
None/not available
Geographic coverage
https://www.geonames.org/2634343/west-midlands.html
Lead time
1-2 months
Summary
Documentation
Community acquired pneumonia (CAP) is a leading cause of hospital admission and has high rates of mortality and complications, especially in older people with frailty. Data from PIONEER examining CAP admissions in winter 19/20 and winter 20/21 demonstrated that hospital admissions due to CAP fell by 40% in 20/21 compared to 19/20 but the 30-day mortality rate almost doubled in winter 20/21 compared to 19/20. Frailty was thought to be a determinant of poor outcomes.
To explore this further, PIONEER, working with the NIHR Midlands BRC Infections and acute care theme have curated a highly granular dataset of 2,158 community acquired pneumonia admissions. The data includes demography, comorbidities, Charlson comorbidity index, Manchester mobility score (MMS), clinical frailty score (CFS) and symptoms on presentation, serial physiology and acuity, investigations, CURB-65 assessments, intensive care, treatments (drug, dose, route), diagnostic codes (ICD-10 & SNOMED-CT), outcomes (death and readmissions).
Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
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Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
---|---|---|---|---|
Persons | 2158 patients admitted for CAP | 2158 | Count | 16 Sep 2024 |
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Modified
30/10/2024
Distribution release date
31/10/2024
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Start date
01/09/2019
End date
31/01/2022
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Trusted Research Environments (TRE) are built using Microsoft Azure services and hosted in the UK to provide research teams a safe, secure and agile environment which allows users to quickly analyse, interpret and form an enriched view of primary care information through a range of integrated datasets.
Health data collated from multiple sources is ingested into a secure data lake which will then allow subsets of data to be made available to research teams on approval of a data request. Once approved a customer specific TRE is made available with a standard set of leading analytical tools from Microsoft including Azure Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale data warehouses). Specific tools can be provided at an additional cost over the standard platform data access charge and the PIONEER team will work with you to determine your exact needs.
Access to the TRE is managed using the latest virtual desktop technology to provide a safe and secure end-user experience. By utilising leading edge design PIONEER are able to create TREs rapidly to enable us to service any customer requirement.
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