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Moorfields Eye Dementia Dataset
Population Size
232,000
People
Years
2000
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
England
Lead time
Not applicable
Summary
This dataset contains secondary care level data from routine attendances to units under the provision of Moorfields Eye Hospital NHS Foundation Trust. The data is derived from information health systems and imaging devices from the Trust.
Documentation
The Moorfields Eye Dementia Dataset is a large longitudinal multimodal dataset derived from routinely collected data acquired as part of patient care in units under the provisions of Moorfields Eye Hospital NHS Foundation Trust (MEH). This includes sociodemographic and clinical data recorded through the Trust information health systems on all individuals aged 18. The dataset contains individuals who have an image at at least 40. In addition, tabular data on imaging including imaging characteristics and clinically relevant quantifiable indices (e.g. retinal vascular tortuosity) are provided from select processing algorithms.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
232,000
Keywords
Secondary Care, Dementia, Retina, Eye disease, Research, Health Data, Ophthalmology
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | All unique patients within the dataset | 232000 | Count | 10 Sep 2024 |
Events | unique images within dataset | 2480000 | Count | 10 Sep 2024 |
Provenance
Purpose of dataset collection
Care
Collection source setting
Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Clinic
Patient pathway description
"The data is derived from routinely collected data as part of patient care at Moorfields Eye Hospital NHS Foundation Trust. It is representative of urban (ethnically and socioeconomically diverse) populations attending hospital eye services. Referrals to hospital eye services primarily come from either primary care (GPs and community optometry)
, the national screening service for diabetic eye disease, and emergency attendances to the Trust accident & emergency department. As a tertiary level unit for certain eye diseases, the Trust also receives referrals for rare eye disease, including inherited retinal disease, intraocular inflammation and ocular oncology."Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Other
Version
1.0.0
Modified
08/10/2024
Citation Requirements
Insight at Moorfields
Coverage
Start date
01/01/2000
Time lag
Not applicable
Geographic coverage
United Kingdom, England, London
Minimum age range
40
Maximum age range
150
Follow-up
Unknown
Accessibility
Language
en
Controlled vocabulary
LOCAL
Format
text/csv
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
Not applicable
Access request cost
There is a cost assoiated with dataset access, this cost is subject to the Data use application
Access service description
We provide a Secure Research Enviroment from which the data can be securely accessed. The cost of the environment will depend on the compute level required.
Jurisdiction
GB
Data use limitation
General research use, No general methods research
Data use requirements
Not for profit use, Return to database or resource, Time limit on use, Project-specific restrictions
Data Controller
NHS data controller - Moorfields
Data Processor
Insight at Moorfields