Dataset - Health Data Research Gateway

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Moorfields Eye Dementia Dataset

Population Size

232,000

People

Population Size statistic card

Years

2000

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Dataset

Publications using this dataset (external search)

Collection(s)

Data Custodian

Summary

This dataset contains secondary care level data from routine attendances to units under the provision of Moorfields Eye Hospital NHS Foundation Trust. The data is derived from information health systems and imaging devices from the Trust.

Documentation

The Moorfields Eye Dementia Dataset is a large longitudinal multimodal dataset derived from routinely collected data acquired as part of patient care in units under the provisions of Moorfields Eye Hospital NHS Foundation Trust (MEH). This includes sociodemographic and clinical data recorded through the Trust information health systems on all individuals aged 18. The dataset contains individuals who have an image and are at least 40 years of age. In addition, tabular data on imaging, including imaging characteristics and clinically relevant quantifiable indices (e.g. retinal vascular tortuosity), are provided from select processing algorithms.

Dataset type

Health and disease

Dataset population size

232000

Keywords

Observations

Observed Node	Disambiguating Description	Measured Value	Measured Property	Observation Date
Persons	All unique patients within the dataset	232000	Count	09 Sep 2024
Events	Unique images within dataset	2480000	Count	09 Sep 2024

Provenance

Purpose of dataset collection

Care

Collection source setting

Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Clinic

Patient pathway description

The data is derived from routinely collected data as part of patient care at Moorfields Eye Hospital NHS Foundation Trust. It is representative of urban (ethnically and socioeconomically diverse) populations attending hospital eye services. Referrals to hospital eye services primarily come from either primary care (GPs and community optometry), the national screening service for diabetic eye disease, and emergency attendances to the Trust accident and emergency department. As a tertiary level unit for certain eye diseases, the Trust also receives referrals for rare eye disease, including inherited retinal disease, intraocular inflammation and ocular oncology.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Other

Version

1.0.0

Modified

08/10/2024

Citation Requirements

INSIGHT at Moorfields

Coverage

Start date

01/01/2000

Time lag

Not applicable

Geographic coverage

United Kingdom, England, London

Minimum age range

Maximum age range

150

Follow-up

Unknown

Accessibility

Language

Alignment with standardised data models

LOCAL

Controlled vocabulary

LOCAL

Format

text/csv

Data Access Request

Dataset pipeline status

Not available

Access rights

https://www.insight.hdrhub.org/insight-data

Time to dataset access

Variable

Access request cost

There is a cost associated with dataset access, subject to the Data Use Application

Access service description

We provide a Secure Research Enviroment from which the data can be securely accessed. The cost of the environment will depend on the compute level required.

Jurisdiction

Data use limitation

General research use,No general methods research

Data use requirements

Not for profit use,Return to database or resource,Time limit on use,Project-specific restrictions

Data Controller

NHS data controller - Moorfields

Data Processor