HDR Gateway logo
HDR Gateway logo

Bookmarks

NHS priority challenge: Developing tools to prevent avoidable admissions

Population Size

503,154

People

Years

2021 - 2022

Associated BioSamples

None/not available

Geographic coverage

https://www.geonames.org/2634343/west-midlands.html

Lead time

1-2 months

Summary

A highly granular dataset of 503,154 Emergency Department presentations curated by PIONEER, working with HDR-UK. The data includes admission details, demography, presenting symptoms, serial physiology and acuity, investigations, treatments, and outcomes.

Documentation

The NHS long term plan includes prioritising work to avoid hospital admissions. Emergency admissions are costly and frequently unpleasant experiences for patients. Many hospital admissions could potentially be avoided if there were care pathways available to support the patient before this became an urgent care concern. These conditions are known as ambulatory care sensitive (ACS) and urgent care sensitive (UCS) conditions, but at a systems level, we only have vague tools to identify what an ACS and UCS condition is.

PIONEER, working with HDRUK, has curated a highly granular dataset of 503,154 Emergency Department and inpatient admissions. The data includes admission details, demography, initial presentation, presenting symptoms, investigations, treatments (all, including medicine dose and route), procedures, operations and outcomes. It also includes care process data, including ward stays, clinical review times and the healthcare professionals involved in care decisions. The current dataset includes admissions from 01-10-2021 to 30-09-2023 but can be expanded to assess other timelines of interest.

Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.

Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details.

Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.

Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.

Dataset type
Health and disease, Measurements/Tests, Lifestyle
Dataset sub-type
Not applicable
Dataset population size
503154

Keywords

Admission Prevention, Early Intervention, Risk Stratification, Predictive Analytics, Preventative Care, Patient Monitoring, Healthcare Utilisation, Chronic Condition Management, Integrated Care,, Decision Support, Emergency Avoidance, Population Health

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

503154 A&E and inpatient admissions

503154

Count

30 Sep 2024

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Secondary care - Accident and Emergency, Secondary care - In-patients
Patient pathway description
Data is representative of the multi-ethnicity population within the West Midlands (42% non white). Data includes all patients admitted during this timeframe, with National data Opt Outs applied, and therefore is representative of admissions to secondary care. Data focuses on in-patient stay in hospital during the acute episode but can be supplemented on request to include previous and subsequent hospital contacts (including outpatient appointments) and ambulance, 111, 999 data.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Quarterly
Version
1.0.0
Modified

15/11/2024

Distribution release date

15/11/2024

Citation Requirements
This publication uses data from PIONEER, an ethically approved database and analytical environment (East Midlands Derby Research Ethics 20/EM/0158)

Coverage

Start date

01/10/2021

End date

20/09/2022

Time lag
Less than 1 week
Maximum age range
150
Follow-up
0 - 6 Months

Accessibility

Language
en
Alignment with standardised data models
LOCAL
Controlled vocabulary
ICD10, SNOMED CT, OPCS4
Format
SQL, application

Data Access Request

Dataset pipeline status
Available
Time to dataset access
1-2 months
Access request cost
www.pioneerdatahub.co.uk/data/data-services-costs/
Access method category
TRE/SDE
Access service description

Trusted Research Environments (TRE) are built using Microsoft Azure services and hosted in the UK to provide research teams a safe, secure and agile environment which allows users to quickly analyse, interpret and form an enriched view of primary care information through a range of integrated datasets.

Health data collated from multiple sources is ingested into a secure data lake which will then allow subsets of data to be made available to research teams on approval of a data request. Once approved a customer specific TRE is made available with a standard set of leading analytical tools from Microsoft including Azure Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale data warehouses). Specific tools can be provided at an additional cost over the standard platform data access charge and the PIONEER team will work with you to determine your exact needs.

Access to the TRE is managed using the latest virtual desktop technology to provide a safe and secure end-user experience. By utilising leading edge design PIONEER are able to create TREs rapidly to enable us to service any customer requirement.

Jurisdiction
GB-ENG
Data use requirements
Project-specific restrictions
Data Controller
University Hospitals Birmingham NHS Foundation Trust
Data Processor
NOT APPLICABLE

Dataset Types: Health and disease, Measurements/Tests, Lifestyle


Collection Sources: Secondary care - Accident and Emergency, Secondary care - In-patients